An Internet Guide . . .

Useful Web Sites for Parents of Children with Special Health Care Needs

By Linda Rowley - Coordinator of the Family Village Project
http://www.familyvillage.wisc.edu/
Updated
July 2008

This list is designed to give parents an starting point for their exploration of the World Wide Web. It is not intended to be a comprehensive list. If you know of other sites that should be included in future updates of this list please contact Linda Rowley at rowley@waisman.wisc.edu.

Contents:

| General Search Engines | Subject Guides/Directories | Health & Medical Specialty Search Engines |
| Legal Specialty Search Engines | Invisible Web | Language Translation Sites | Comprehensive Information Sites |
| Parent to Parent/Parent Matching | Support Group Directories |

| Advocacy & Public Policy | Assistive Technology | Early Intervention | Special Education |

| Diagnosis/Disability Specific Information | Clinical Trials | Pharmacology Data Bases |
| Medical Reference |

| General Reference | Miscellaneous | Internet Resources |

The most recent version of this document can be found at:
http://www.familyvillage.wisc.edu/websites.html

 

General Search Engines

Google

http://www.google.com/

Yahoo
http://www.yahoo.com/

Ask
http://www.ask.com 

Alta Vista
http://altavista.com/

 


Lycos

http://www.lycos.com/

Excite
http://www.excite.com/

Web Crawler
http://webcrawler.com/

Subject Guides / Directories

Librarians' Index to the Internet

http://www.lii.org/

Infomine
http://infomine.ucr.edu/

BUBL LINK / 5:15
http://bubl.ac.uk/link/

About.Com
http://www.about.com/
 


Look Smart

http://www.looksmart.com

Open Directory Project
http://dmoz.org/

The WWW Virtual Library
http://vlib.org

 

Specialty Search Engines - Health & Medical


Med Line
PubMed - From the National Library of Medicine
http://www.ncbi.nlm.nih.gov/sites/entrez?db=PubMed


Health Finder
http://www.healthfinder.gov/

National Library of Medicine
http://www.nlm.nih.gov/
Online version of the world's largest biomedical library.

MedExplorer
http://www.medexplorer.com/
Health and Medical Information Center

MedHunt: World Wide Medical Search
http://www.hon.ch/cgi-bin/find?1

MedWeb
http://www.medweb.emory.edu/MedWeb/

 


Neuroscience Now

http://www.neuroguide.com/

E-Medicine Searchable Text Book
http://www.emedicine.com/

Mental Health Net - A comprehensive guide to mental health online, featuring over 4,000 individual resources.
http://mentalhelp.net/

Health Hotlines - Toll-Free Numbers from the National Library of Medicine
http://sis.nlm.nih.gov/hotlines/

Consumer Information Center - Full text versions of hundreds of the best federal consumer publications available.
http://www.pueblo.gsa.gov/

 

Specialty Search Engines - Legal


The Law Engine

http://www.thelawengine.com/

Find Law - Internet Legal Resources
http://www.findlaw.com/

 


LawCrawler
- Legal Web & Databases Search
http://lawcrawler.findlaw.com/

LawGuru.Com
http://www.lawguru.com/search/lawsearch.html

 

Invisible Web - Information not indexed by search engines

Incy Wincy -
The Invisible Search Engine
http://www.incywincy.com/

OAIster -
 (pronounced "oyster")
http://oaister.umdl.umich.edu/o/oaister/

Info Please -  Searchable Invisible Web databases
http://www.infoplease.com/
 


S
earchAbility - Annotated guide
http://www.searchability.com/

Find Articles - by Look Smart
http://www.findarticles.com/

Language Translation Sites


AltaVista Translations

http://babelfish.altavista.com/translate.dyn

InterTran
http://www.tranexp.com:2000/InterTran?

 


Free Translation

http://www.freetranslation.com/

Systran
http://www.systransoft.com/

 

Comprehensive Information Sites


The Family Village

http://www.familyvillage.wisc.edu/

CODI - Cornucopia of Disability Information
http://codi.buffalo.edu/

disABILITY Information and Resources
Jim Lubin's Site
http://www.makoa.org/
 
 


Internet Resources for Special Children (IRSC)

http://www.irsc.org/disability.htm

Yahoo:Health:Diseases and Conditions
http://www.yahoo.com/Health/Diseases_and_Conditions/

Yahoo.Society and Culture:Disabilities
http://www.yahoo.com/Society_and_Culture/Disabilities/
 

Parent Support & Parent-to-Parent Matching


Our Kids
http://www.our-kids.org

MUMS National Parent to Parent
Matches all disorders
http://www.netnet.net/mums/

Birth Defect Research for Children
Matches for parents of children with any disorder, especially birth defects
http://www.birthdefects.org/

The MAGIC Foundation
Matching for families of children with similar growth disorders.
http://www.magicfoundation.org/


 


Chromosome Deletion Outreach

Matches for families of children with chromosome deletions, additions, inversions, translocations and rings
http://www.chromodisorder.org/

Regional/State Parent-to-Parent Programs
http://www.familyvillage.wisc.edu/cof_p2p.htm
 

Support Group Directories


The Family Village Library

http://www.familyvillage.wisc.edu/specific.htm

National Information Sources on Disabilities
http://www.naric.com/research/kb/default.cfm

American Self-Help Group Clearinghouse
http://www.mentalhelp.net/selfhelp/

NORD - National Organization for Rare Disorders
http://www.rarediseases.org/

The Alliance of Genetic Support Groups
http://www.geneticalliance.org

Canadian Directory of Genetic Support Groups

http://www.lhsc.on.ca/programs/medgenet/

Neurological Disorders: Patient Resources, Foundations, and Support Organizations
http://www.ninds.nih.gov/find_people/government_agencies/govt_orgs_index.htm

Directory of Kidney and Urologic Diseases Organizations
http://kidney.niddk.nih.gov/kudiseases/pubs/kuorg/

Directory of Digestive Diseases Organizations for Patients
http://digestive.niddk.nih.gov/resources/patient.htm

Organizations for Endocrine and Metabolic Diseases
http://www.niddk.nih.gov/health/endo/pubs/endorg/endorg.htm

Advocacy & Public Policy


Family Voices

http://www.familyvoices.org/

Justice For All
http://www.jfanow.org/

FedWorld Information Network 
Starting point for federal government information.
http://www.fedworld.gov/

Thomas - Legislative Information on the Web
http://thomas.loc.gov/
 
 


Bill Text
- Part of Thomas, this site allows the user to search text of bills and resolutions before Congress
http://thomas.loc.gov/home/c109query.html

Project Vote Smart - Allows users to view voting records of members of Congress.
http://www.vote-smart.org/

ADA Home Page - U.S. Department of Justice
http://www.usdoj.gov/crt/ada/adahom1.htm
 

Assistive Technology


AbleData

http://www.abledata.com/

Family Village Mall
Assistive Technology and Adaptive Products
http://www.familyvillage.wisc.edu/mall.htm
 


Abilityhub
http://www.abilityhub.com/
This Assistive Technology web site is for people with a disability, and will direct you to adaptive equipment for computers.
 

 
Early Intervention


The Family Village - Early Intervention Resources

http://www.familyvillage.wisc.edu/education/ei.html

National Early Childhood Technical Assistance Center
http://www.nectac.org/
 
 

The Division for Early Childhood - DEC
http://www.dec-sped.org/

Zero to Three
http://www.zerotothree.org/
 

Special Education


The Family Village School Links

http://www.familyvillage.wisc.edu/school.htm

Yahoo: Education: Special Education
http://dir.yahoo.com/Education/Special_Education/

ERIC - Educational Resources Information Center
http://www.eric.ed.gov/

 


The Special Ed Advocate

http://www.wrightslaw.com/

PACER / TA Alliance
http://www.pacer.org/
http://www.taalliance.org/
 

Diagnosis/Disability Specific Information

Online Mendelian Inheritance in Man
- From the National Center for Biotechnology Information, this this database is a catalog of human genes and genetic disorders.
http://www3.ncbi.nlm.nih.gov/entrez/query.fcgi?db=OMIM&cmd=Limits

Medicine Net - Diseases & Treatment Index
http://www.medicinenet.com/Script/Main/AlphaIdx.asp?p=A_DT

National Institute of Neurological Disorders and Stroke Disorders Data Base
http://www.ninds.nih.gov/disorders/disorder_index.htm

Health Touch - This site has hundreds of information pamphlets on a variety of health related topics.
http://www.healthtouch.com/level1/hi_toc.htm

 


MedlinePlus
- health information from the National Library of Medicine.
http://medlineplus.gov/

NORD - The National Organization for Rare Disorders
http://www.rarediseases.org/

NICHCY
http://www.nichcy.org/

Disability Information & Resource Centre - Fact Sheets on dozens of conditions.
http://www.enable.net.au/

 

Clinical Trials

CenterWatch Clinical Trials Listing Service
http://www.CenterWatch.com/


 

ClinicalTrials.gov
http://www.clinicaltrials.gov/


 
Pharmacology Data Bases


RxList - The Internet Drug Index

http://www.rxlist.com/

RxMed
http://www.rxmed.com/

 


MEDLINEplus: Drug Information

http://www.nlm.nih.gov/medlineplus/druginformation.html
Medical Reference


The On-line Medical Dictionary

http://cancerweb.ncl.ac.uk/omd/

Merriam Webster Medical Dictionary
http://www.intelihealth.com/IH/ihtIH/WSIHW000/9276/9276.html

Medical Dictionary
http://www.medicinenet.com/Script/Main/AlphaIdx.asp?li=MNI&p=A_DICT

Laboratory Tests
http://www.merck.com/pubs/mmanual/tables/296tb2.htm

Procedures & Tests - Medicine Net
http://www.medicinenet.com/Script/Main/AlphaIdx.asp?li=MNI&p=A_PROC

 

 

 

General Reference


Find Article
http://www.findarticles.com/PI/index.jhtml

The Internet Public Library
http://www.ipl.org/div/serials/

LII - Magazine Topics
http://lii.org/search/file/magazines

Mag Portal
http://www.magportal.com/

News Directory
http://www.newsdirectory.com/

BadgerLink
http://www.badgerlink.net/

ZIP Code Lookup and Address Information
http://www.usps.gov/ncsc/

Switch Board
http://www.switchboard.com/

 


Yahoo People Search
http://www.yahoo.com/search/people/

Big Book Yellow Pages
http://www.bigbook.com/

Big Foot
http://www.bigfoot.com/

Yahoo Maps
http://maps.yahoo.com/yahoo/

Map Quest
http://www.mapquest.com/

Maps on Us
http://www.mapsonus.com/

Google Maps
http://maps.google.com/

 

Miscellaneous


Recreation
Family Village - Recreation & Leisure for People with Disabilities
http://www.familyvillage.wisc.edu/recreat.htm

Respite
The National Respite Locator Service
http://www.respitelocator.org/

The Sibling Support Project
http://www.thearc.org/siblingsupport/


Newsgroups

Google Groups

Allows you to find where a particular topic is discussed on Usenet.
http://groups.google.com/

Free E-mail Accounts

Yahoo Mail
http://www.yahoo.com/r/m2

Hot Mail - Web based free e-mail account
http://www.hotmail.com/

 

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Last Updated July 2007