Parent-to-Parent Coffee Shop

National Parent Matching & Parent-to-Parent Programs

• United States
• Great Britain
• New Zealand
• Australia

United States

United States: All Diagnoses

• Parent to Parent USA (P2PUSA)
  2030 M St. NW, Suite 350
  Washington DC 20036
  Cell: (717) 503-8992
  Email: ksbrill@comcast.net
  Website: http://www.p2pusa.org
  
  Parent to Parent USA is a non-profit organization committed to promoting access, quality and leadership in parent to parent support nationally through a network of Alliance members committed to research, mentorship, and leadership development. The Parent to Parent USA website (www.p2pusa.org) is designed to help families whose children have a special health care need, disability, or mental health issue find peer support and information, and to provide technical assistance and training opportunities to emerging and established peer support programs.
• Birth Defect Research for Children
  800 Celebration Avenue, Suite 225
  Celebration, FL 34747
  Phone: 407-566-8304
  Fax: 407-566-8341
  E-mail: staff@birthdefects.org
  Website: http://www.birthdefects.org
  This association maintains the National Birth Defect Registry which is used to match families of children who have the same or similar birth defects.
• Mothers United for Moral Support (MUMS)
  c/o Julie Gordon
  150 Custer Court
  Green Bay, Wisconsin USA 54301-1243
  (920) 336-5333
  Fax: (920) 339-0995
  Website: http://www.netnet.net/mums/
  
  This organization has a database of over 21,200 families from 56 countries covering over 3500 disorders. Very rare syndromes or conditions can be matched. Families whose children have the same or similar disorder can find support and information by exchanging valuable information about their children.
• Search and Respond
  c/o Exceptional Parent Magazine & The Family Education Network
  209 Harvard Street, Suite 303
  Brookline, Massachusetts USA 02215
  (617) 730-5800
  Fax: (617) 730-8742
  Website: http://www.eparent.com/register.asp?Status=3&Page=resources_search_respond/index.asp
  This organization focus on all disabilities.
  
  

United States: Neurometabolic Disorders

• Association for Neurometabolic Disorders
  c/o Cheryl Volk
  5223 Brookfield Lane
  Sylvania, Ohio USA
  (419) 885-1497
  This association matches neurometabolic disorders such as Galactosemia, Maple Syrup Urine Disease, PKU and others.

United States: Growth Disorders

• MAGIC Foundation for Children's Growth
  6645 W. North Ave.
  Oak Park, Illinois, USA, 60302
  (708) 383-0808
  (800) 3 MAGIC 3
  Fax: (708) 383-0899
  E-mail: mary@magicfoundation.org
  Website: http://www.magicfoundation.org/
  This foundation supports local groups and provides parent-to-parent matching through networking forms that connect families with the same disorder.
  
  

United States: Chromosome Disorders

• Chromosome Deletion Outreach (CDO)
  P.O. Box 724
  Boca Raton, FL 33429-0724 USA
  (561) 395-4252 Family Helpline
  Website: http://www.chromodisorder.org/
  This organization focuses on chromosome deletions, inversions, and additions.

Great Britain

Great Britain: All Diagnoses

• Making Contact
  c/o Contact a Family
  209-211 City Road
  London EC1V 1JN
  Tel: (020) 7608 8700
  http://www.makingcontact.org/
  
  This organization focuses on all disabilities. Contact a Family has been putting families with disabled children in touch with each other for over 25 years. MakingContact.org complements our existing services and gives you the chance to safely and easily get in touch with others who are affected by the same or similar disabilities or medical conditions as you are.

  With thousands of medical conditions and disabilities listed and thousands of people signed up and looking for contact, this site could help you find the people you are looking for. It's free, safe and easy to use.
  
  

Great Britain: Chromosome Disorders

• Unique - Rare Chromosome Disorder Group
  P.O.Box 2189
  Caterham
  Surrey
  CR3 5GN
  England
  Telephone or Fax: (44) (0)1883 330766
  Web: http://www.rarechromo.org/
  This organization focuses on rare chromosomal disorders.
  
  

Great Britain: Metabolic Diseases

• The National Information Centre for Metabolic Diseases
  Climb Building
  176 Nantwich Road
  Crewe, CW2 6BG
  Freephone 0800 652 3181
  fam.svcs@climb.org.uk
  http://www.climb.org.uk/
  

New Zealand

New Zealand: All Diagnoses

• Parent-to-Parent New Zealand, Inc.
  P.O. Box 234
  Waikato Mail Centre
  Vialou House, 6 Vialou Street
  Hamilton
  Ph: 07-8341108 or 07-8341153
  Fax: 07-8341108
  TOLL-FREE: 0508 236 236
  Email p2pnational@compuserve.com
  Website: http://www.parent2parent.org.nz/
  This organization focuses on all disabilities.

Austrialia

Austrialia: All Diagnoses

• Association of Genetic Support of Australia (AGSA)
  66 Albion Street
  Surry Hills
  New South Wales, Australia, 2010
  Telephone: +61 2 9211 1462
  Fax: +61 2 9211 8077
  Reg Charity No. CFN: 15481 ABN: 83 594 113 193
  E-mail: agsa@ozemail.com.au
  http://www.agsa-geneticsupport.org.au/

  AGSA will endeavor to facilitate contact with another family/individual affected by the same, or similar conditions, and/or provide information about an overseas support group. AGSA also provides: A Peer Support and Information Officer who deals with enquiries and facilitates ongoing support for individuals, families, health professionals and other interested groups.

[Family Village Home]
[Library] [Coffee Shop] [Hospital] [Shopping Mall] [Post Office] [Bookstore] [Research]
[Living with Disability] [Disability Culture] [School] [Legal Issues] [Recreation & Leisure] [Family Resources] [Information]

Last Updated July 13, 2012 by familyvillage@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/nptpp.htm