Xeroderma Pigmentosum

• Who to Contact
• Where to Go to Chat with Others
• Learn More About It
• Web Sites
• Search Google for "Xeroderma Pigmentosum"

Who to Contact

XP Society, Inc.
437 Snydertown Road
Craryville, N.Y. 12521
518-851-2612
877-977-2873
E-mail: xps@xps.org
Web: http://www.xps.org/

The XP Society, founded by Caren and Dan Mahar, is recognized as a key provider of information, support and activities for xeroderma pigmentosum patients and their families. XPS officers participate in worldwide professional conferences dealing with xp and related rare genetic disorders.

 

Where to Go to Chat with Others

• Light Conversations Discussion Forum
  This forum provides a place to have free and open discussions on all aspects of light sensitivity in all its forms, whether you are a sufferer or a carer, we proudly welcome members who are dealing with conditions from Actinic Prurigo to Xeroderma Pigmentosum and anything in between.

Learn More About It

• MedlinePlus Medical Encyclopedia: Xeroderma pigmentosa
  
• GeneReviews: Xeroderma Pigmentosum
• About Xeroderma pigmentosum
• Xeroderma Pigmentosum from eMedicine
• Xeroderma Pigmentosum I - from OMIM
• Xeroderma Pigmentosum IV - from OMIM
  

Web Sites

• XP Society Web Site

• The Children Of The Moon
  

• XP Family Support Group
  
• XP Support Group - UK

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Last Updated November 18, 2008 by familyvillage@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/lib_xp.htm