Williams Syndrome Association (WSA)
PO Box 297
Clawson, Michigan, USA 48017-0297
The mission of the WSA is to help all individuals with Williams Syndrome to reach their full potential and take their rightful place in our society, disseminate timely and accurate information regarding the syndrome to families, professionals, and the public, support each other and become an active and visible force to increase professional awareness and interest in the syndrome, and actively support research into educational, behavioral, social and medical aspects of the syndrome.
WSA has local chapters and a directory of these groups is available. They encourage networking among families and list of area families are provided. They publish the, Heart To Heart, newsletter three times a year, this is included in membership fees and have a brochure that offers facts about Williams Syndrome. WSA has a parent packet that contains a copy of the newsletter, fact sheets, articles, and growth charts.
The association has a bibliography of books and articles and audio cassettes that are available to members. Call or write for resources order form. WSA collects information on physicians and researchers who treat/study the condition and disseminates this information to its members. They provide information and referrals to other resources and providers.