Wolf-Hirschhorn Syndrome

• Who to Contact
• Where to Go to Chat with Others
• Learn More About It
• Web Sites
• Search Google for "Wolf-Hirschhorn Syndrome"

Who to Contact

4p- Support Group
c/o Wendy Trout
2159 128th St.
New Richmond, WI 54017
(715) 248-3937
Web: http://www.4p-supportgroup.org/

4p- Support Group Inc. is an non-profit association of families of children with WHS. They offer phone support, newsletters, national biannual gathering and regional meetings to meet and exchange experiences and information. They welcome parents, foster parents, relatives, and professionals working with WHS children and their families. Please feel free to contact one of the addresses above for further information.

Where to Go to Chat with Others

• Chromosomes 4, 5 and 6
  This is a group for people interested in chromosome anomalies involving chromosomes 4, 5 or 6, especially the rarer ones. Wolf-Hirschhorn (4p-) Syndrome and Cri du Chat (5p-) Syndrome are the most common, but there are others.

Learn More About It

• General Information About WHS from the 4p- Parent Support Group
• Wolf-Hirschhorn Syndrome article from OMIM
• Wolf-Hirschhorn Syndrome from eMedicine
• Wolf-Hirschhorn or 4p- deletion syndrome

Web Sites

• 4p- Parent Support Group
• Wolf Hirschhorn Support Group UK
• Wolf-Hirschhorn Syndrom Germany

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Last Updated November 19, 2008 by familyvillage@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/lib_w-hs.htm