Ventilator Use

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites

Who to Contact

International Ventilator Users Network (IVUN)
4207 Lindell Blvd., #110
St. Louis MO 63108-2915
314/534-0475
314/534-5070 Fax
Web: http://www.post-polio.org/ivun/

IVUN links ventilator users of all ages and health professionals who are experts in and advocates for home care and mechanical ventilation. IVUN News is published twice a year. It is a resource of information for users of home mechanical ventilation, their families, and the health care community that actively promotes networking between the consumer and professional communities. 

Where to Go to Chat with Others

• Vent-Users Mailing List
  The purpose of this list is to provide a forum for people who require a ventilator (respirator) to breathe to communicate with others who share the same condition.

• The Vent Support Network
  For people who live with a trachy and/or ventilator. A very friendly, laid back place to share experiences and ideas.

Learn More About It

• Vent Glossary
  Contains terms commonly associated with ventilators, the community, and respiratory physiology.

Web Sites

• Vent Users' Support Page

• International Ventilator Users Network (IVUN)

• Champ Camp
  Provides outdoor activities and enrichment experiences for children and adolescents with tracheostomies and those requiring ventilator assistance.

• Vent World
  

• Non-Invasive Ventilator Users page

• Kids with Tracheostomies
   
• A Leg Up For Kids Foundation
  Foundation designs, builds, and donates the SAM-V (Safe And Mobile Ventilator) stroller to children who rely on mechanical ventilators.