- Velo-Cardio-Facial Syndrome Educational Foundation, Inc.
PO Box 874
Milltown, New Jersey 08850
The Velo-Cardio-Facial Syndrome Educational Foundation is an organization comprised of both professional and lay people whose purpose is to educate the public, the scientific community, families of individuals with Velo-Cardio-Facial syndrome, and individuals with Velo-Cardio-Facial syndrome (VCF) about this common genetic disorder. The Foundation acts as an advocate for both patients with VCF and the professional community treating this disorder, provides a forum for the advancement of knowledge relevant to the diagnosis and treatment of individuals with VCF, and provides a forum for discussion of the problems, treatments, or achievements associated with VCF and its management.
The VCFS Educational Foundation consists of over 1300 lay and professional members worldwide. Annual dues are used to produce and distribute literature and educational information to the membership, including: a general information packet regarding VCFS, a periodic newsletter, the official Foundation web site, and such other information as determined by the board of directors and member council, as well as directly addressing queries regarding VCFS.