Usher Syndrome

• Who to Contact
• Where to Go to Chat with Others
• Learn More About It
• Web Sites
• Search Google for "Usher Syndrome"

Who to Contact

Usher Family Support
11435 Cronhill Drive
Owings Mills, MD 21117
1-800-683-5555
http://www.blindness.org/usher/

The urgent mission of The Foundation Fighting Blindness, Inc. is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa (RP), macular degeneration, Usher Syndrome, and the entire spectrum of retinal degenerative diseases.

Where to Go to Chat with Others

• Usher-Friends
  A Friendly Chat Group for People with Usher Syndrome
  
• Ushers
  News, support and friendship list for all who are affected by or interested in Usher's Syndrome
• UsherLife
  Dedicated to people who have Usher syndrome, their friends, partners and families and those with an interest.

Learn More About It

• Usher syndrome
  From the National Institute on Deafness and Other Communication Disorders
  
• The Unique Educational and Services Needs of Children With Deaf-Blindness
• Usher Syndrome
  
• Usher Syndrome - A Condition which affects Hearing and Sight
  
• What is Usher Syndrome?
  

• Usher Syndrome: New Insights Lead to Earlier Treatment

Web Sites

• A-Z to Deafblindness
• Usher's Syndrome Page
• DB-LINK - The National Information Clearinghouse on Children Who Are Deaf-Blind
• The Deaf-Blind Association - Australia
  
• Hereditary Hearing Loss Homepage

Back to [U - V]
[Family Village Home]
[Library] [Coffee Shop] [Hospital] [Shopping Mall] [Post Office] [Bookstore] [Research]
[Living with Disability] [Disability Culture] [School] [Legal Issues] [Recreation & Leisure] [Family Resources] [Information]

Last Updated November 25, 2008 by familyvillage@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/lib_ushe.htm