Thalassemia / Family Village Library

Thalassemia

Synonyms: Cooley's Anemia, Mediterranean Anemia

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
Search Google for "Thalassemia"

Who to Contact

Cooley's Anemia Foundation
330 Seventh Avenue, #900
New York, NY 10001
800-522-7222 (toll-free)
E-mail: info@cooleysanemia.org
Web: http://www.cooleysanemia.org

The Cooley's Anemia Foundation is dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley's anemia/thalassemia major.

Our mission is advancing the treatment and cure for this fatal blood disease, enhancing the quality of life of patients and educating the medical profession, trait carriers and the public about Cooley's anemia/thalassemia major.

Where to Go to Chat with Others

Thalassemia Patients and Friends
This club was created for the education and support for Thalassemia. All are welcome. Make new friends and learn more about how we each deal with Thalassemia. Whether you are a patient or a family member dealing with this diorder.
Adopting Thalassemia
A support group and information site for families who have adopted children with Thalassemia
Thalassemia Patients and Friends
This club was created for the education and support for Thalassemia. All are welcome. Make new friends and learn more about how we each deal with Thalassemia. Whether you are a patient or a family member dealing with this disorder. Submit questions you have and a member or members will answer them.

Learn More About It

Introduction to Thalassemia
What Is Thalassemia?
Treating Thalassemia
Learning About Thalassemia
From the National Human Genome Research Institute

Web Sites