Shwachman Syndrome

• Who to Contact
• Where to Go to Chat with Others
• Learn More About It
• Web Sites
• Search Google for "Shwachman Syndrome"

Who to Contact

Shwachman-Diamond Syndrome Support International
127 Western Avenue
Sherborn, MA 01770 U.S.A.
Toll Free 877-737-4685
info@shwachman-diamond.org
http://www.shwachman-diamond.org

Shwachman-Diamond Syndrome Support International is the premier nonprofit support organization helping the victims of this disease. Our primary goals are to link families for emotional support locally, nationally and internationally, and supply them with the most current medical information available. This information is provided through the knowledge and cooperation of our medical advisory board. We are in the forefront of the fight to find a cure for this disease.

This organization was founded in 1994 by concerned parents. Our membership is comprised of children and adults with Shwachman-Diamond Syndrome, their parents, families, friends, and concerned medical professionals. We are now offering support to families in seventeen countries from around the world and our membership is growing daily.

Where to Go to Chat with Others

• Shwachman-Diamond Family & Friends List
  A support list for all affected in some way by Shwachman-Diamond Syndrome (SDS). We wish to provide those affected by SDS a place to find encouragement and support.
• Shwachman-Diamond Syndrome Support List
  To provide others who are affected by Shwachman-Diamond Syndrome a safe place to seek and give support in dealing with this disease. Patients, parents, friends, relatives and physicians are welcome to participate.
  
  

Learn More About It

• What is Shwachman Syndrome?
• Understanding SDS
• Shwachman Syndrome Information
  From eMedicine
• Shwachman Syndrome - From OMIM
• Shwachman-Diamond Syndrome
  From Gene Reviews
• Shwachman-Diamond Syndrome
  From Genetics Home Reference
• My Child has Shwachman Syndrome
  From Children's Hospital Boston

Web Sites

• Shwachman Diamond America
• Shwachman-Diamond Syndrome Canada
• Shwachman-Diamond Syndrome Support International

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Last Updated January 28, 2009 by familyvillage@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/lib_ss.htm