The National Scoliosis Foundation is dedicated to helping children, parents, adults and health care providers with the complexities of spinal deformities such as scoliosis. The National Scoliosis Foundation strives to promote public awareness, provide reliable information, encourage on-going research, and educate and support the scoliosis community with early detection and screening programs, treatment methods, pain management, and patient care. NSF acts as a clearing house for information and materials about scoliosis and kyphosis. The Foundation has local chapters with a directory in their newsletter, and will provide assistance to persons wishing to start a support group in their locality.
Scoliosis Association, Inc.
P.O. Box 811705
Boca Raton, Florida, 33481-1705
1-800-800-0669
561-994-2455 (fax)
E-mail: normlipin@aol.com
Web: http://www.scoliosis-assoc.orgThe Scoliosis Association, Inc. is a non-profit, volunteer non-medical organization. Since 1974, we have been helping those with scoliosis by providing information and having support groups and information lines. We have a variety of ways by which you can get in contact with us as shown throughout our website. Additionally, you may have a support group or information hotline in your area. Please go to our support page to find the list of support groups or information lines. There are 54 active chapters (support groups) at this time. Support groups meet periodically, have rap sessions for the interchange of information and, often, guest speakers. A question and answer period for general questions is usually a part of the meeting. If you don't find a support group in your area and would like to start one, let us know. We'll give all the help possible to get you started.
We also provide a periodical, BACKTALK, to members, which is printed three or four times a year. BACKTALK is written by medical professionals and patients. There are "state-of-the art" articles on current diagnosis or management and treatment of scoliosis. The "Ask the Doctor" column contains questions from readers and answers from doctors. There usually is a "My Story" article in which a patient tells their experience with scoliosis. A source for "Pen Pals" is given as well as information about future meetings of support groups.