The Scleroderma Research Foundation exists as the only organization in the nation dedicated exclusively to finding a cure for this terrible disease. Through nationwide public awareness efforts and an innovative research approach that brings together the best of business, government, science and medicine, the Foundation has raised millions of dollars for critical disease research.
The mission of the Scleroderma Research Foundation is to find a cure for scleroderma, a life-threatening and degenerative illness, by funding and facilitating the most promising, highest quality research and by placing the disease and the need for a cure in the public eye.
The Scleroderma Foundation is the national organization for people with scleroderma and their families and friends. It was formed January 1, 1998, by a merger between the West Coast-based United Scleroderma Foundation and the East Coast-based Scleroderma Federation.
We have a three-fold mission: Support: To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information; Education: To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns; and Research: To stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases. While we budget over $1 million per year for new research into the cause and cure of scleroderma, we also consider the other two parts of our mission very important.