Sickle Cell Disease
Who to Contact
Sickle Cell Disease Association of America
231 East Baltimore Street, Suite 800
Baltimore, Maryland 21202
410.528.1555 Office
410.528.1495 Fax
800.421.8453 General Public
E-Mail: scdaa@sicklecelldisease.org
http://www.sicklecelldisease.org/
The Sickle Cell Disease Association of
America, Inc. (SCDAA), formerly know as the National Association for Sickle Cell
Disease (NASCD) was founded in 1971 to provide an effective coordinated
community-based approach to developing and implementing strategies to resolve
issues surrounding sickle cell disease. Through three decades, SCDAA and its
Member Organizations have demonstrated how community-based organizations can
work with local and state government agencies in furtherance of national health
care objectives.
Sickle Cell Disease Association of America, Inc. is helping to promote finding a universal cure for sickle cell disease, and helping to improve the quality of life for individuals and families where sickle cell disease related conditions exist.
The American Sickle Cell Anemia Association
10300 Carnegie Avenue
Cleveland Clinic / East Office Building (EEb18)
Cleveland, Ohio 44106
Phone: 216-229-8600
Web: http://www.ascaa.org/
The organization currently provides a wide range of services to those individuals and families with
either sickle cell anemia, sickle cell trait, or variants of the disease. Key services include: ongoing
follow-up diagnostic testing, counseling, and tracking services for parents with infants who screen
positive by the State Laboratory; Family Counseling and Support Services; coordination of medical,
social services, education and support for the program's clientele; teacher education and screening
services delivery at upwards of 75 local health fairs. In addition, ASCAA makes outreach to the
region's African American, Hispanic, Mediterranean, and Arab communities for family education
and the identification of the incidence of sickle cell disease.
Where to Go to Chat with Others
- Sickle Cell Group
This group is for anyone who has sickle cell anemia or is involved in some way with someone who does have it.
- The Sickle
Cell Forum
Discussion forum for those living with or who know someone with Sickle Cell
Anemia
Learn More About It
Web Sites