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The Sickle Cell Disease Association of America, Inc. (SCDAA), formerly know as the National Association for Sickle Cell Disease (NASCD) was founded in 1971 to provide an effective coordinated community-based approach to developing and implementing strategies to resolve issues surrounding sickle cell disease. Through three decades, SCDAA and its Member Organizations have demonstrated how community-based organizations can work with local and state government agencies in furtherance of national health care objectives. Sickle Cell Disease Association of America, Inc. is helping to promote finding a universal cure for sickle cell disease, and helping to improve the quality of life for individuals and families where sickle cell disease related conditions exist.
The organization currently provides a wide range of services to those individuals and families with either sickle cell anemia, sickle cell trait, or variants of the disease. Key services include: ongoing follow-up diagnostic testing, counseling, and tracking services for parents with infants who screen positive by the State Laboratory; Family Counseling and Support Services; coordination of medical, social services, education and support for the program's clientele; teacher education and screening services delivery at upwards of 75 local health fairs. In addition, ASCAA makes outreach to the region's African American, Hispanic, Mediterranean, and Arab communities for family education and the identification of the incidence of sickle cell disease.