Rett Syndrome

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
Search Google for "Rett Syndrome"

Who to Contact

International Rett Syndrome Association
9121 Piscataway Rd Suite 2B
Clinton MD 20735
1-800-818-7388
301-856-3334
301-856-3336 (Fax)
E-mail: irsa@rettsyndrome.org
Web: http://www.rettsyndrome.org/

A comprehensive worldwide organization dedicated to Rett syndrome. The International Rett Syndrome Association disseminates timely, accurate, objective information on Rett syndrome throughout the world to people who need information and resources and to researchers who can make a difference and provides books and materials, annual conferences, regional seminars, quarterly newsletters, a website with more than 2 billion hits last year, RettNet, a toll free help line, a listening ear and a caring heart so you know you are not alone

Where to Go to Chat with Others

• RETT Net
  An ongoing discussion for Doctors, Researchers and parents of Rett Syndrome girls.

• Club Rett
  Our Mailing List is for ADULTS who have a Rett Syndrome Angel in their life. It is a place to share ANYTHING you want to talk about.

• Rett Syndrome Parents
  A place for Rett Syndrome Parents to talk about- discuss and share thoughts- idea's and questions about Rett Syndrome.

• Rettangels
  Atypical Angelman Syndrome and Atypical Rett Syndrome/dual diagnosis
   
• Rett Syndrome Forum
  The Rett Syndrome Forum is a moderated e-mail discussion group connecting parents and others interested in Rett syndrome.  It is a forum for questions, support, advice, research, discussion and announcements.

Learn More About It

• Rett Syndrome Fact Sheet
  National Institute of Neurological Disorders and Stroke (NINDS)

• Rett Syndrome, What is It?

• About Rett Syndrome
  From the Rett Syndrome Research Foundation
  
  
• What is Rett syndrome
  National Institute of Child Health and Human Development

Web Sites

• International Rett Syndrome Association Home Page

• Our Rett Syndrome Page - Debbie Schilling, mother of a child with Rett Syndrome

• Rett Syndrome Association UK

• Rett Syndrome Research Foundation

• Rett Angels Web Site
   
• Australian Rett Syndrome Study
  
  

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Last Updated June 7, 2007 by rowley@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/lib_rett.htm