Who to Contact
International Rett Syndrome Association
9121 Piscataway Rd Suite 2B
Clinton MD 20735
A comprehensive worldwide organization dedicated to Rett syndrome. The International Rett Syndrome Association disseminates timely, accurate, objective information on Rett syndrome throughout the world to people who need information and resources and to researchers who can make a difference and provides books and materials, annual conferences, regional seminars, quarterly newsletters, a website with more than 2 billion hits last year, RettNet, a toll free help line, a listening ear and a caring heart so you know you are not alone
Where to Go to Chat with Others
- RETT Net
An ongoing discussion for Doctors, Researchers and parents of Rett Syndrome girls.
- Club Rett
Our Mailing List is for ADULTS who have a Rett Syndrome Angel in their life. It is a place to share ANYTHING you want to talk about.
- Rett Syndrome Parents
A place for Rett Syndrome Parents to talk about- discuss and share thoughts- idea's and questions about Rett Syndrome.
Atypical Angelman Syndrome and Atypical Rett Syndrome/dual diagnosis
The Rett Syndrome Forum is a moderated e-mail discussion group connecting
parents and others interested in Rett syndrome. It is a forum for questions,
support, advice, research, discussion and announcements.
Learn More About It
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