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Prader-Willi Syndrome Association (USA) is dedicated to serving individuals affected by Prader-Willi Syndrome (PWS), their families, and interested professionals. To provide information, education, and support services to its members, PWSA offers:
Organized in 1975 to provide a resource for education and information about Prader-Willi syndrome and support for families, professionals and other interested citizens, PWSA(USA) was first headquartered in the Minneapolis/St. Paul area, then in St. Louis, Missouri, and currently in Sarasota, Florida since October of 1997. The association is governed by a 12 member Board of Directors who, together with an executive director and four officers, are responsible for directing the organization's operations and serving the 27 state and regional chapters and their members. In addition, 11 health service professionals serve on a Scientific Advisory Board to review research proposals.
The national PWSA conference is held in July or June of each year and features a day of preconference meetings focused on current research and group home management, followed by three days of educational sessions for both families and professionals.