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Norrie Disease

* Who to Contact
* Where to Go to Chat with Others
* Learn More About It
* Web Sites
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Who to Contact

Norrie Disease Association (NDA)
Neurogenetics Simches Research Building, 5-238
185 Cambridge St.
Boston, MA 02114
http://www.norries.org/

The Norrie Disease Association is a voluntary not-for-profit service organization dedicated to providing support and information to people with Norrie Disease and their families. Norrie Disease is a rare inherited disorder characterized by blindness in both eyes at birth; some affected children may later develop mild to profound hearing loss and varying degrees of mental retardation.

Established in 1994, the Norrie Disease Association compiles and disseminates educational and research information on the disorder; maintains a patient registry; and provides referrals to medical and/or genetic services. The Association also provides educational and supportive information through its database, directory, and flyers.


Where to Go to Chat with Others


Learn More About It


Web Sites


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