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The Foundation for Nager and Miller Syndrome (FNMS)
13210 SE 342nd Street
Auburn, WA 98092-8505
1-800-507-3667 (toll-free)
253-333-1483 (phone)
253-288-7679 (fax)
E-mail: ddfnms@aol.com
Web: http://www.fnms.net/The Foundation for Nager and Miller Syndrome is an international support group dedicated to helping those affected by these two similar genetic conditions. FMNS serves as an information clearinghouse that links other similarly challenged families together. They initiated and are involved in a genetic research project working to locate the genes responsible for causing the syndromes. They provide scholarships for children between the ages of 8-18 years old who wish to attend Camp ABOUT FACE in Indiana.
The Foundation for Nager and Miller Syndrome will assist anyone who wishes to start a local support group and provides parent-to-parent matching through a pictorial directory and a networking list. The Foundation publishes a newsletter, All About Me, twice a year that is included in membership fees and offers several brochures. They have a new parent packet that contains, a questionnaire, newsletter, brochures, research information and networking list.
The Foundation has a bibliography of books and articles and a lending library. Call or write for the list. The foundation collects information on physicians and researchers who treat/study the condition and makes this information available to members. They will make referrals to craniofacial teams who have experience in treating these conditions.
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