Neurofibromatosis, Inc. is dedicated to individuals and their families who are affected by the neurofibromatoses. They services the needs through coordinated educational, support, clinical and research programs, and promotes national, state and local community involvement. They have local chapters and provide a directory of these in their newsletter and their NF flyer. They will provide materials and assistance to persons wishing to start a support group in their locality and it provides informal parent-to-parent matching.
The Foundation sponsors scientific research aimed at finding the cause and cure for both types of neurofibromatosis, NF1 and NF2; promotes the development of clinical activities, which assure individuals with neurofibromatosis ready access to the highest caliber of medical care; develops programs that will increase public awareness of neurofibromatosis; provides support services for patients and families with accurate and comprehensive information about neurofibromatosis, with support group activities and referrals to qualified physicians and healthcare professionals.
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