Nail-Patella Syndrome

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
Search Google for "Nail-Patella Syndrome"

Who to Contact

Nail Patella Syndrome Worldwide
25826 Norrington Square
South Riding, VA 20152
E-mail: npsw@nailpatella.org
Web: http://www.nailpatella.org/

Nail Patella Syndrome is a complex condition that varies greatly between each individual. The purpose of the website is to provide information to each specialist field of medicine so that they may recognize those with NPS, as well as to provide contact personnel should further information be needed in the care of those diagnosed. In addition, this website hopes to provide information to the general public so that people who are just discovering that they have NPS have a place to go for information.

Orthopedics, Nephrology, Ophthalmology and Genetics have been highlighted as these are the specialist fields of medicine commonly associated with NPS. There are many other areas that should be included, for example Rheumatology, but for the moment we should concentrate on the four mentioned above. Please visit the Medical Involvement page for a more in depth look at each area.

 

Where to Go to Chat with Others

• OurNPSgroup · NPS
  We are an open discussion forum for people with NPS that is owned solely by its members. The group is not affiliated with NPSW although some members may be.

• Nail_Patella_Syndrome
  An educational discussion group for people with NPS or people dealing with friends and family who have NPS. It is a safe place where we can go to openly tell our NPS stories, voice our concerns and share our experiences without sifting through hundreds of non-NPS messages.

• NPSW
  Forum for people with NPS to address questions and concerns to the Nonprofit organization established for the betterment of the NPS community. Welcome to Nail Patella Syndrome Worldwide.

Learn More About It

• Nail-Patella FAQ

• About NPS

• Nail-Patella - eMedicine
  
  
• Nail-Patella syndrome
  From the University of Michigan Kellogg Eye Center

Web Sites

• Nail Patella Syndrome Worldwide
  

• Nail Patella Syndrome Website
  
  
• Nail Patella Syndrome UK 
   
• Nail Petella Syndrome Contact Group - UK

Back to [M - N]
[Family Village Home]
[Library] [Coffee Shop] [Hospital] [Shopping Mall] [Post Office] [Bookstore] [Research]
[Living with Disability] [Disability Culture] [School] [Legal Issues] [Recreation & Leisure] [Family Resources] [Information]

Last updated April 10, 2007 by familyvillage@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/lib_nail-patella.html