Where to Go to Chat with Others
- Myoclonus Discussion Forum
- OMS Families
This mailing list is dedicated to those that are affected by Opsoclonus-Myoclonus Syndrome. It's to share imformation, treatment, and options. More importantly, it's an opportunity just to share with others that are affected by the rare disease of OMS. Through our experience we can help each other on the OMS rollercoaster.
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