Maple Syrup Urine Disease

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
Search Google for "Maple Syrup Urine Disease"

Who to Contact

Maple Syrup Urine Disease Family Support Group (MSUD-FSG)
82 Ravine Road
Powell, Ohio, 43065
(740) 548-4475
http://www.msud-support.org/

The Maple Syrup Urine Disease Family Support Group has a mission is to help other families to adjust to having a child with Maple Urine Syrup Disease and encourage newborn screening. They have local chapters and a parent list for people who have a child with Maple Syrup Urine Disease. They do parent-to-parent matching by giving names of those who live in the same geographyical area.

The MSUD Family Support Group collects information on physicians and researchers who treat or study the condition and disseminate this information to its membership. They provide referrals to other resources and providers.

Where to Go to Chat with Others

• MSUD eGroup
  This group provides support to parents of children with MSUD as well as to adults with MSUD. MSUD is a potentially life threatening metabolic disorder.

Learn More About It

• Maple Syrup Urine Disease
  From the Medline Medical Encyclopedia

• Maple Syrup Urine Disease
  From Genetics Home Reference

• Maple Syrup Urine Disease
  From eMedicine

• Maple Syrup Urine Disease
  Genetic Science Learning Center at the University of Utah

• Maple Syrup Urine Disease from OMIM

• Introducción en Español

Web Sites

• Maple Syrup Urine Disease Family Support Web Site

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Last Updated 3/7/07 by familyvillage@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/lib_msud.htm