Mitochondrial Disorders

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
Search Google for "Mitochondrial Disorders"

Who to Contact

United Mitochondrial Disease Foundation
8085 Saltsburg Road, Suite 201
Pittsburgh, PA 15239
412-793-8077 (phone)
412-793-6477 (fax)
E-mail: info@umdf.org
Website: http://www.umdf.org/

The United Mitochondrial Disease Foundation is redefining hope for families affected by mitochondrial diseases -- hereditary disorders, now considered as common as childhood cancers, that affect the cell's ability to produce life-sustaining energy. UMDF offers support to all sufferers of mitochondrial disorders regardless of diagnosis, suspected or confirmed. Our mission is to promote research for the cure and treatment of mitochondrial diseases and to provide support to affected families.

Where to Go to Chat with Others

• Mito
  For those affected by mitochondrial disease - a place to discuss, share and gain information and support.
  
  
• Mitoldies
  Adults dealing with Mitochondrial Disease sometimes feel they have no where to turn for support. Mitoldies list is created for adults who have or suspect they have a mitochondrial disorder to discuss the needs and issues that must be dealt with on a day to day basis. It is also for the caregivers. We welcome your posts and hope we can be a source of support, strength and encouragement at all times.
  
  
• Mito Angels
  An on-line support group for parents who have lost a child to a mitochondrial cytopathy.
  

Learn More About It

• Search MitoDat - Mendelian Inheritance and the Mitochondrion Database

• Search Online Mendelian Inheritance in Man (OMIM) Database for a Specific Mitochondrial Disorder

• Mitochondrial Disorders
  Neuromuscular Disease Center, Washington University, St. Louis, MO

• GeneReviews: Mitochondrial Disorders Overview
  
  
• Mitochondrial Disease overview
  Cleveland Clinic
  
  
• Mitochondrial Disorders & Epilepsy

• Mitochondrial Nutrition, Aging and Cognition

Web Sites

• United Michondrial Disease Foundation (UMDF)

• Center for Inherited Disorders of Energy Metabolism

• Mitochondria Interest Group