Multiple Hereditary Exostosis (MHE) / Family Village Library

Multiple Hereditary Exostosis (MHE)

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
Search Google for "Multiple Hereditary Exostoses"

Who to Contact

MHE Coalition
8838 Holly Lane
Olmsted Falls, OH 44138-2701
440-235-6325
440-427-9032
E-mail: CheleZ1@aol.com
Web: http://www.mhecoalition.com/

The MHE Coalition was formed to provide support and information to people living with Multiple Hereditary Exostoses ("MHE") and to reach out to MHE-affected individuals and families throughout the world. Our organization is dedicated to promoting and encouraging research to find the causes, treatments, and ultimately the cure for this rare bone disease.

Where to Go to Chat with Others

Hereditary Multiple Extosis
A place for friends to gather and talk about HME.
MHE
This forum allows MHE-affected individuals/families to share their knowledge and experiences. MHE affects each person differently. Postings reflect a wide range of experiences, many of which may or may not affect you/your child/or family.
MHE Xray Sharing Group
This group enables people with multiple hereditary exostoses (MHE, also known as Osteochondromatosis or Diaphyseal Aclaisis) to share images from Xrays, MRI scans and so on. It is also intended to provide a place to share details of treatments and symptoms.

Learn More About It

Hereditary Multiple Exostoses: What is it?
From Hereditary Multiple Exostoses Support Group — United Kingdom
Multiple Hereditary Exostoses
From the Multiple Hereditary Exostoses (MHE) Family Support Group
Osteochondroma and Osteochondromatosis
From eMedicine

Web Sites

Multiple Hereditary Exostoses Foundation
Information on Multiple Hereditary Exostoses (MHE/MO/HME) includes, Orthopeadics, Genetics, Research being conducted, MHE Conferences and Support.
MHE Coalition
MHE and Me - A Support Group for Kids with Multiple Hereditary Exostoses and Their Families
Hereditary Multiple Exostoses Support Group — United Kingdom

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