Menkes Disease

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
Search Google for "Menkes' Disease"

Who to Contact

Corporation for Menkes Disease
5720 Buckfield Ct.
Fort Wayne, IN 46804
(219) 436-0137
 

This corporation offers a parent and professional network that seeks to provide support and referrals for Menke's Disease families. It also offers a national seminar, networks physicians, a parent newsletter, sibling pen pal program, and a telephone support network.

Where to Go to Chat with Others

• Menkes Kinky Hair Syndrome
  This is a support eGroup open to anyone interested in making friends, sharing information and providing support for persons affected by "Menkes Kinky Hair Syndrome." Affected individuals, family members, friends, medical professionals and rare disease researchers are all encouraged to join this open forum.

Learn More About It

• MEDLINEplus Medical Encyclopedia: Menkes syndrome
  

• Menkes Disease
  From the National Institute of Neurological Disorders and Stroke

• Menkes Disease - eMedicine
   
• Copper And Menke's Disease
   
• Menkes Disease
  From the Online Mendelian Inheritance of Man (OMIM)
  
  
• Genetics and background about Menkes disease

Web Sites

• Menkes Memorial Page