Marden-Walker Syndrome

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
Search Google for "Marden-Walker Syndrome"

Who to Contact

Marden Walker Family Support Group
P.O. Box 239
New Haven, KY 40051 USA
(502) 549-3028
E-mail: stearnsky@yahoo.com

This organization helps affected individuals, families of affected individuals, the public or media, and professionals (e.g., clinicians, teachers). It provides peer support, matching of individuals/families, referrals for non-medical services, and a registry of affected individuals. It also distributes fact sheets, a newsletter, a resource guide, and a membership directory.

Where to Go to Chat with Others

We are unaware of any discussion groups specifically for this diagnosis. Please e-mail us if you have a suggestion.

Learn More About It

• Marden Walker Syndrome From OMIM
  
  
• Marden Walker Syndrome from Web MD
  

Web Sites

We are unaware of any websites specifically for this diagnosis. Please e-mail us if you have a suggestion.