The National Lymphedema Network (NLN) is a non-profit organization founded to provide education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema. The NLN supports research into the causes and possible alternative treatments for this often incapacitating, long-neglected condition.
The NLN provides a toll-free recorded information line, referrals to lymphedema treatment centers, health care professionals, training programs, support groups; a quarterly newsletter with information about medical and scientific developments, support groups, pen pals, an updated resource guide; an educational courses for health care professionals and patients; a biennial national conference on lymphedema; and an extensive computer database.
LRF's programs and functional goals include providing direct research funding; facilitating patient participation in clinical trials and in tissue banking for in vitro research; coordinating private and public grant opportunities and subsidizing grant writing services for eligible investigators, and fostering the exchange of information and resources within the research community. Moreover, LRF is working to bring to the attention of government officials the long overdue need for nationally supported lymphatic research.
What is Lymphedema?
From the Society for Vascular Surgery