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The Network's mission is to help relieve and possibly eliminate the deterioration of the family because of the extensive care children with this condition require. It offers parent support, updated and accurate medical information, genetic counseling, and equipment and toy sharing. It has local chapters including chapters in Canada and world wide. They have a directory available. The Network will provide assistance to individuals who wish to start a support group in their locality, and provides parent-to-parent matching through a database of families and children.
The Network publishes, The Lissencephaly Network Newsletter, three times a year which is included in membership. They also have brochures that contain information on genetic and medical studies, and offer a new parent packet that includes, seizure, feeding, and nutrition information for parents, membership registration and release forms. They have a bibliography of articles that are available to members for a minimal fee, a toy and equipment lending library, and are in the process of developing videos for distribution.
The Lissencephaly Network collects information on physicians and researchers who treat/study the condition and disseminate this information to its members. They provide referrals to other resources and provide information packets to those who request them.