Hypohidrotic Ectodermal Dysplasia

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
Search Google for "Hypohidrotic Ectodermal Dysplasia"

Who to Contact

Sarah Moody Foundation (formerly known as the HED Foundation)
P.O. Box 9421
Hampton, Virginia 23670-0421
757-329-3007
http://www.sarahmoodyfoundation.org/

The mission of the Sarah Moody Foundation is to improve the quality of life for children suffering from Sarah Moody Foundation and related disorders that affect the body's ability to cool itself. One of the most important ways in which the Sarah Moody Foundation enhances the quality of life is through the distribution of personal cooling systems, most commonly the KoolVest ®.

Where to Go to Chat with Others

• Ectodermaldysplasia
  Support for people and families affected by the various forms of ectodermal dysplasia, including Hypohidrotic Ectodermal Dysplasia

Learn More About It

• Hypohidrotic Ectodermal Dysplasia with Hypothyroidism and Agenesis of the Corpus Callosum
  From Online Mendelian Inheritance of Man (OMIM)

• Hypohidrotic Ectodermal Dysplasia with Hypothyroidism and Ciliary Dyskinesia
  From Online Mendelian Inheritance of Man (OMIM)
  
  
• GeneReviews: Hypohidrotic Ectodermal Dysplasia
  
  
• eMedicine - Ectodermal Dysplasia

Web Sites

• Sarah Moody Foundation

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Last Updated 12/08/2006 by familyvillage@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/lib_hypoh.htm