Related Conditions: Osler-Weber-Rendu syndrome
The HHT Foundation was formed in 1990 to aid and support persons with Hereditary Hemorrhagic Telangiectasia (HHT) also known as Osler-Weber-Rendu Syndrome; to provide patients, families and doctors with educational information; to foster an exchange of information about the diagnosis and treatment of HHT between patients, physicians, researchers, genetic counselors, charitable organizations, government agencies, industry, academic institutions and the general public; to raise funds for genetic and clinical research and for sponsoring special scholarships for studies pertaining to HHT.
HHT Foundation International is a worldwide, non-profit organization whose purpose is to support patients and families and educate medical professionals. This site is dedicated to the individuals and medical professionals who encounter the daily challenges of managing Hereditary Hemorrhagic Telangiectasia (HHT) also known as Osler-Weber-Rendu Syndrome. HHT is a genetic disorder, which affects blood vessels. This disorder is worldwide affecting males and females of all races and ethnic groups. Up to 1/3 of HHT patients can have multiple organ involvement, which can be disabling and or life threatening. HHT can be treated successfully if correctly diagnosed.
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