Hirschsprung Disease
Who to Contact
-
National Institutes of Health
National Digestive Diseases Information Clearinghouse
2 Information Way
Bethesda MD 20892-3570
(800) 891-5389
(301) 654-3810
(301) 907-8906 (fax)
http://www.niddk.nih.gov/
Where to Go to Chat with Others
- Hirschsprungs_Disease
Welcome to the International Rare Disease Support Network's (www.raredisorders.com) support group for people affected by 'Hirschsprung's Disease.' This support group is open to anyone interested in making friends, sharing information and support for people affected by this rare 'orphan' disorder.
- Hircshprung's Support Network
The Hirschsprung's & Motility Disorders Support Network (HMDSN) is an organisation for people whose kids suffer from various motility disorders such as Hirschsprung's Disease, Neuronal Intestinal Dysplasia, Intestinal Pseudo-Obstruction, GERD, Short Bowel Syndrome, and the like.
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