Goldenhar Syndrome

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
Search Google for "Goldenhar Syndrome"

Who to Contact

Goldenhar Syndrome Support Network Society
9325 163 Street
Edmonton, Alberta
T5R 2P4; Canada
Email: support@goldenharsyndrome.org
http://www.goldenharsyndrome.org/

Our goal is to provide Support and Information to families and individuals involved with Goldenhar Syndrome and its many related conditions.

Where to Go to Chat with Others

• Goldenhar Syndrome
  Our goal is to provide support and information to families and individuals affected by Goldenhar Syndrome, its related conditions.

• Goldenhar Adults
  This list is in conjunction with goldenharsyndrome@yahoogroups.com and is set up to give the adult and teens with Goldenhar Syndrome and related conditions a place to talk to others who are or have gone through the same things that they have. (Parents of children with GS please join goldenharsyndrome-subscribe@yahoogroups.com)

Learn More About It

• What is Goldenhar Syndrome?
  From the World Craniofacial Foundation

• Goldenhar Syndrome
  From the National Craniofacial Association

• Goldenhar Syndrome Information from OMIM

• Goldenhar Syndrome with Ipsilateral Radial Defect information from OMIM

Web Sites

• The Goldenhar Syndrome Support Network

• Goldenhar Support Group - UK
  From Contact a Family