Freeman-Sheldon Parent Support Group
509 East Northmont Way
Salt Lake City, Utah 84103-3324
The Freeman-Sheldon Parent Support Group (FSPSG) is an international self-help organization for individuals and families touched by Freeman-Sheldon syndrome. FSPSG is a volunteer organization founded in 1982. Our mission is to advance the understanding of Freeman-Sheldon syndrome through research and facilitate the care affected individuals through referral, mutual self-help, and advocacy. We are an informational resource for affected individuals, healthcare providers, educators, and the general public.