Freeman-Sheldon Syndrome

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
Search Google for "Freeman-Sheldon Syndrome"

Who to Contact

Freeman-Sheldon Parent Support Group
509 East Northmont Way
Salt Lake City, Utah 84103-3324
(801) 364-7060
E-mail: fspsg@mail.burgoyne.com
Web: http://www.fspsg.org/

The Freeman-Sheldon Parent Support Group (FSPSG) is an international self-help organization for individuals and families touched by Freeman-Sheldon syndrome. FSPSG is a volunteer organization founded in 1982. Our mission is to advance the understanding of Freeman-Sheldon syndrome through research and facilitate the care affected individuals through referral, mutual self-help, and advocacy. We are an informational resource for affected individuals, healthcare providers, educators, and the general public.

Where to Go to Chat with Others

• Freeman-Sheldon Syndrome
  This is an open forum support eGroup for anyone interested in sharing information and/or support for persons affected by "Freeman-Sheldon Syndrome." Affected persons, family members, friends, medical professionals and rare disease researchers are all encouraged to join this forum.

• FSS
  A place for people worldwide who are afflicted with, have loved ones who are or are interested in Freeman Sheldon Syndrome to communicate with each other.

Learn More About It

• What is Freeman-Sheldon Syndrome?

• Freeman-Sheldon Syndrome Information

• FSS - Contact a Family - United Kingdom

• Freeman Sheldon information from OMIM

• Whistling Face Syndrome - Recessive Type

Web Sites

• Freeman Sheldon Parent Support Group Web Site