Floating Harbor Syndrome Support Group
Deana Swanson, Director
1964 Sheffield Road
Harmony, NC 28634
The support group was founded when one mom contacted another mom whose child also had Floating Harbor Syndrome. Our desire is to help others find a diagnosis and to offer solutions that we have found helpful in dealing with our own kids who have this syndrome. We offer a newsletter published 3-4 times a year with articles by other families with Floating Harbor children and adults, phone consultations, and e-mail support with questions and concerns regarding FHS. We also have medical journal articles available if more information is needed.