Related Diagnosis: Idiopathic Torsion Dystonia (ITD), Generalized Dystonia, Segawa's Dystonia, X-Linked Dystonia, Blepharospasm, Spasmodic Torticollis, Oromandibular dystonia (Meige's syndrome) Spasmodic dysphonia.
Dystonia Medical Research Foundation (DMRF) has a mission to advance research into the cause of and cure for dystonia; to create physician and public awareness; and to sponsor patient support groups. The Foundation serves people with dystonia, and their friends and family. They have local support groups, and will provide materials or assistance in starting a local group. Call to locate the group nearest you. They also have a parents' directory.
Dystonia Medical Research Foundation publishes Dystonia Dialogue four times a year at no cost to members. The DMRF offers several pamphlets about various types of dystonia, including: Spasmic Torticollis, Spasmodic Dysphonia, and Blepharospasm, and "8-18", A Guidebook for Young People with Dystonia, and a Guidebook for Families: Special Education Rights. DMRF has books and videos for distribution and you can also request a reading list of articles or books pertaining to dystonia.
The organization maintains a physician referral list of doctors who treat dystonia. They host an annual conference; contact DMRF for more information.
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