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Dysautonomia Foundation, Inc. (DF)
633 Third Avenue, 12th Floor
New York, New York, USA, 10017
DF is a medical research organization with a focus on genetics and the search for the FD gene. Their goal is to increase understanding of all aspects of FD. They have local groups and support other groups wishing to start a local chapter.
They publish a twice yearly newsletter, DYS Course, and have a brochure " Are You the One" that provides an explanation of FD, and its symptons. A new parent packet contains " A Manual of Comprehensive Care", a letter of welcome and a history of the foundation. DF holds a yearly conference; call the Foundation for more details.
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