American Association of the Deaf-Blind (AADB)
8630 Fenton Street, Suite 121
Silver Spring, Maryland 20910-3803
(TTY Phone: (301) 495-4402
Voice Phone: (301) 495-4403
Fax: (301) 495-4404
Web: http://www.aadb.org/The American Association of the Deaf-Blind has a mission to assure that a comprehensive, coordinated system of services is accessible to all deaf-blind persons enabling them to achieve their maximum potential through increased independence, productivity and integration into the community. AADB provides basic services to its members such as print-to-braille or braille-to-print transcription of personal papers, shopping services, loan of Braille books, and other necessities.
AADB publishes a quarterly magazine, The Deaf-Blind American, that provides information on new communication technology, education, ideas on mobility, and human interest stories. The association has a lending library of braille materials, and the AADB Resource Directory for which there is a charge. They provide information and referrals to other providers and resources. .
DB-LINK National Information Clearinghouse on Children who are Deaf-Blind
345 North Monmouth Avenue
Monmouth, Oregon USA 97361
(800) 438-9376
(800) 854-7013 (TTY)
Web: http://www.tr.wou.edu/dblink/DB-LINK is a federally funded information and referral service that identifies, coordinates, and disseminates (at no cost) information related to children and youth who are deaf-blind (ages 0 to 21 years). Four organizations have pooled their expertise into a consortium-based clearinghouse.
The purpose of DB-LINK is to ensure that information about practices, programs, and available services are readily accessible to children and youth in the United States, who are deaf-blind and their families and provide information that will assist education, medical, and service personnel in their efforts to deliver comprehensive services nationwide to the approximately 10,000 infants, toddlers, children, and youth who are deaf-blind in the U.S.
Canadian Deafblind and Rubella Association (CDBRA)
CDBRA's mission is to assist all deafblind persons and their families in achieving the best quality of life by, developing programs and services to meet their needs, advocating for deafblind persons, facilitating cooperation among agencies, individuals and government, and promoting quality lifelong intervention as a right of all deafblind Canadians. They have local chapter and a directory of these is available. They will provide assistance to individuals who wish to start a support group in their locality.
2652 Morien Hwy
Port Morien, Nova Scotia B1B 1C6
http://www.cdbra.ca/The Association publishes the newsletter, Intervention, twice a year, which is a benefit of membership. They have brochures that explain the condition and organization, and about intervention. They have a bibliography of articles that are available to members and videos that are for distribution including, "Deafblindness," "Vision in Children," and "Wings." Write for further information to the above address. The Association provides information and referrals to other resources and organizations.
National Family Association for the Deaf-Blind
141 Middle Neck Road
Sands Point, New York USA 11050
(800) 255-0411
(516) 944-8900 (voice)
Web: http://www.nfadb.org/
The National Family Association for Deaf-Blind (NFADB) is a non-profit, volunteer-based family association. Our philosophy is that individuals who are deaf-blind are valued members of society and are entitled to the same opportunities and choices as other members of the community. NFADB is the largest national network of families focusing on issues surrounding deaf blindness.