Cystinuria

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
Search Google for "Cystinuria"

Who to Contact

Cystinuria Support Network (CSN)
21001 NE 36th St.
Sammamish, Washington, 98074
United States
E-mail: jann@cystinuria.com
Web: http://www.cystinuria.com/

The Cystinuria Support Network is a mutual-aid support network, developed to put individuals with cystinuna in touch with each other for support and practical advice.

CSN provides a list of all participants to new members and include significant data for each participant. Any of the members may be contacted for support or information. CSN publishes a newsletter once or twice a year called Cystinuria Support Network News at no charge. Members can be refered to centers or physicans that specialize in Cystinuria.

Where to Go to Chat with Others

• Cystinuria Support Network
  This is the mailing list for the Cystinuria Support Network. The Cystinuria Support Network, a peer support network, has been developed to provide a resource for putting individuals in touch with each other for support and practical advice. Since no one can understand the issues like those who are sharing the same experience, this Network will allow us to come together with our strengths, hopes and concerns to offer support and understanding to each other.

• Cystinuria.org Forums

Learn More About It

• MEDLINEplus Medical Encyclopedia: Cystinuria
  From the U.S. National Library of Medicine / National Institutes of Health

• Cystinuria FAQ

• Cystinuria Glossary

• What is Cystinuria?

Web Sites

• Cystinuria Support Network

• International Cystinuria Foundation

• Cystinurie Support Network France