The 5p- Society encourages and facilitates communication among families having a child with 5p-Syndrome and spreads awareness and education of the syndrome to these families and their service providers. The society provides parent-to-parent matching by age and geographical location.
The 5p- Society issues a bi-annual newsletter that is free to members. They have brochures, books, and articles available, and collect information on physicians who treat and study the condition and make this information available via family support coordinators.
The Cri-Du-Chat Syndrome Support Group provides support and friendship for families and carers
throughout Britain; raises awareness of Cri du Chat Syndrome amongst the medical profession and
the public; raises funds to promote research through carefully selected projects; gives
information and advice to families and professionals; organises an Annual Conference for professionals,
families and other interested parties.
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