AboutFace publishes the AboutFace Newsletter, four or six times a year for a requested donation. They also have brochures including, "AboutFace," a general brochure that describes services, "My Child has a Facial Difference," "You, Your Child & the Craniofacial Team," "Aperts, Crouzons, and Other Craniosynostoses Syndromes," and "Making the Difference." they also have "We all have Different Faces," a package of information for teachers and parents to present to schools to encourage inclusion of those with facial differences. AboutFace offers a new parent packet that contains what ever is appropriate for the individual situation.
See also: Apert Syndrome, Craniosynostosis, Hemifacial Microsomia, Microtia, Treacher Collins Syndrome.
CCA promotes the improvement in the quality of life for facially disfigured individuals and their Families, address the medical, financial, psychosocial, emotional and educational concerns relating to craniofacial conditions, and advocates on behalf of and promotes awareness for the facially disfigured.
CCA offers a toll-free physician referral service and emotional support line, workshops and symposiums to educate individuals and their families on medicial and insurance issues, financial assistance with secondary costs, such as travel, food, lodging when traveling out-of-town for surgery.
They have local support groups, and parents may be put in touch with others by signing a release of information card. CCA publishes a quarterly newsletter, CCA News, and has several booklets available for a nominal fee.
[Library] [Coffee Shop] [Hospital] [Shopping Mall] [Post Office] [Bookstore] [Research]
[Living with Disability] [Disability Culture] [School] [Legal Issues] [Recreation & Leisure] [Family Resources] [Information]