Churg-Strauss Syndrome

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
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Who to Contact

Churg-Strauss Syndrome International Support Group
Susan Guza
PO Box 328
Donald, OR 97020-0328
E-mail: SAGuza@aol.com
Web: http://www.churg-strauss.com/

The group started in mid 1997 and aims to provide information, encouragement and fellowship to Churg-Strauss Syndrome patients, care-givers, friends, physicians and relatives and to stimulate debate about the condition ensuring it receives wider recognition.

On first receiving a diagnosis of Churg-Strauss Syndrome it can be very difficult to find any information about it anywhere. This in itself can be very distressing for patients and their friends and family alike. This organisation was set up because some of us found it very difficult to access information, other than what was available on post-mortem diagnoses. This was somewhat demoralising, when what we wanted was to find other living breathing Churg-Strauss Syndrome patients.

Where to Go to Chat with Others

• CSSISG
  The Churg-Strauss Syndrome International Support Group mailing list aims to provide a means for patients, carers and all concerned with the disorder to share their knowledge and experience. Many of the list subscribers are patients who are only too happy to support the newly diagnosed.

Learn More About It

• Frequently Asked Questions about Churg-Strauss

• Churg-Strauss Syndrome - eMedicine

• What is Churg-Strauss?

Web Sites:

• Churg-Strauss Syndrome International Support Group