The group started in mid 1997 and aims to provide information, encouragement and fellowship to Churg-Strauss Syndrome patients, care-givers, friends, physicians and relatives and to stimulate debate about the condition ensuring it receives wider recognition.
On first receiving a diagnosis of Churg-Strauss Syndrome it can be very difficult to find any information about it anywhere. This in itself can be very distressing for patients and their friends and family alike. This organisation was set up because some of us found it very difficult to access information, other than what was available on post-mortem diagnoses. This was somewhat demoralising, when what we wanted was to find other living breathing Churg-Strauss Syndrome patients.
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