Also known as: Congenital Disorders of Glycosylation
CDG Family Network Foundation
P.O. Box 860847
Plano, Texas, 75074
Support for parents of children diagnosed with congenital disorders of glycosylation, an inherited metabolic disease affecting all body parts, especially the central and peripheral nervous systems. Support is attained primarily online, but forum also provides information and referrals, biannual newsletter, phone support, advocacy. Bulletin board for families to interact with questions, comments and updates.