Carbohydrate-Deficient Glycoprotein Syndrome

Also known as: Congenital Disorders of Glycosylation

• Who to Contact
• Where to Go to Chat with Others
• Learn More About It
• Web Sites
• Search Google for "Carbohydrate-Deficient Glycoprotein Syndrome"

Who to Contact

CDG Family Network Foundation
P.O. Box 860847
Plano, Texas, 75074
800-250-5273
http://www.cdgs.com

Support for parents of children diagnosed with congenital disorders of glycosylation, an inherited metabolic disease affecting all body parts, especially the central and peripheral nervous systems. Support is attained primarily online, but forum also provides information and referrals, biannual newsletter, phone support, advocacy. Bulletin board for families to interact with questions, comments and updates.

 

Where to Go to Chat with Others

• CDG List
  This list was started for parents and professionals who have children/patients with this condition. Parents of children with CDG or related diseases are invited to share your experiences as well as questions and answers from other families with the same concerns.

Learn More About It

• Congenital Disorder of Glycosylation - Frequently Asked Questions
• The C D G - Syndrome, what is that?
• Carbohydrate-Deficient Glycoprotein Type I; CDG1 information from OMIM
• Carbohydrate-Deficient Glycoprotein Type II information from OMIM
• Carbohydrate-Deficient Glycoprotein Type III information from OMIM
• Carbohydrate-Deficient Glycoprotein Type IV information from OMIM

Web Sites

• CDGS Family Network
• The CDG Society - Sweden

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Last Updated April 19, 2010 by familyvillage@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/lib_cdgs.htm