Ataxia
See also Ataxia Telangiectasia

Who to Contact
Where to Go to Chat with Others
Learn More About It
Web Sites
Search Google for "Ataxia"

Who to Contact

The National Ataxia Foundation
2600 Fernbrook Lane
Suite 119
Minneapolis, MN 55447-4752
763-553-0020
763-553-0167 fax
E-mail: naf@ataxia.org
Web: http://www.ataxia.org/

The National Ataxia Foundation is a nonprofit organization established in 1957 with the primary mission of encouraging and supporting research into Hereditary Ataxia, a group of neurological disorders which are chronic and progressive conditions affecting coordination. There are more than 45 affiliated chapters and support groups throughout the U.S. and Canada.

NAF's programs, funded through contributions and membership dues, include:

• Encouraging and supporting research efforts to identify the causes and mechanisms of the hereditary ataxias, improving diagnosis, and developing treatment models.
• Locating families affected by ataxia or at risk for ataxia in order to offer information and education.
• Identifying needs and services for purposes of referral.
• Creating and making available educational programs for ataxia families, health care professionals, and the general public.
• Increasing public awareness of hereditary ataxia.

NAF keeps its members informed through its quarterly publication, Generations. Also, by providing access to Electronic NAF Services, offers additional support and information resources.

Where to Go to Chat with Others

• INTERNAF - Ataxia Internet Mailing List
  INTERNAF is an international e-mail based forum to exchange information and support for those who are diagnosed with Ataxia, their families and friends as well as anyone who has an interest in these disorders. It is an independent organisation, run completely by volunteers.

• INTERNAF-NEWS
  This is the International Network of Ataxia Friend's electronic mailing list which provides subscribers with research and medical updates. Once subscribed, you will receive relevant medical update articles forwarded from the INTERNAF list as well as a newsletter at least quarterly.

• NAF Chat Room

• NAF Bulletin Board
   
• FA Parents E-Mail Group
   

Learn More About It

• Ataxia Fact Sheet

• Ataxia Classifications

• What is Ataxia?
   

• Hereditary Ataxia Overview
   

• Friedreich's Ataxia - Frequently Asked Questions
   

Web Sites

• National Ataxia Foundation Web Site

• Ataxia UK
   
• Euro-Ataxia

• International Network of Ataxia Friends

• Friedreich's Ataxia Parents Group
   
• Friedreich's Ataxia Research Alliance (FARA)