Alexander Disease

Who to Contact
Learn More About It
Research
Web Sites
Search Google for "Alexander Disease"

Who to Contact

United Leukodystrophy Foundation
2304 Highland Drive
Sycamore, IL 60178
800-728-5483
E-mail: ulf@tbcnet.com
Web: http://www.ulf.org/

The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social services, and genetic counseling; establishing a communication network among families; increasing public awareness and acting as an information source for health care providers; and promoting and supporting research into causes, treatments, and prevention of the leukodystrophies. Leukodystrophies are a group of genetic nervous system disorders affecting the myelin sheath, which insulates the axon through which nerve impulses are conducted.

Learn More About It

• Alexander Disease - Summary for Parents
  From the Alexander Disease Project at the Waisman Center, University of Wisconsin

• Alexander Disease
  From Online Mendelian Inheritance in Man (OMIM)

• NINDS Alexander Disease Information Page
  From the National Institute of Neurological Disorders and Stroke
  
  

Research

• Alexander Disease Project
  Waisman Center, University of Wisconsin

Web Sites

• United Leukodystrophy Foundation

• Alexander Disease Patient/Family Resources
  From the College of Community Health Sciences at the University of Alabama.

• Contact a Family - United Kingdom

• CLIMB - Children Living with Inherited Metabolic Diseases - United Kingdom

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Last updated August 31, 2007 by rowley@waisman.wisc.edu 
Document Source: http://www.familyvillage.wisc.edu/lib_alex.htm