National Adrenal Diseases Foundation
505 Northern Blvd., Suite 200
Great Neck, New York, 11021
The National Adrenal Diseases Foundation is a non-profit organization dedicated to providing support, information and education to individuals having Addison's disease as well as other diseases of the adrenal glands.
Although Addison's disease is considered a rare disease, it is estimated that at least 10,000 individuals in the United States have this condition (this is probably an underestimation).
Individuals suffering from Addison's disease are often misdiagnosed or go for long painful periods without proper diagnosis. Symptoms of these diseases often mirror those of chronic fatigue syndrome including steadily worsening fatigue, a loss of appetite and some weight loss. Blood pressure is low and falls further when a person is standing, producing lightheadedness. Because of salt loss, a craving for salty foods is common. There may be a darkening of the skin that may look like an inappropriate tan on a person who feels ill.
NADF is committed to bringing information regarding these rare diseases into the public's awareness to facilitate early diagnosis and treatment; sponsors support groups across the country allowing for an exchange of ideas and feelings by individuals who share a common illness; and members receive quarterly newsletters, educational materials, and access to a library of related information.
Individuals with Addison's disease or another disease of the adrenal glands can expect to live a crisis-free life as long as the proper medical care is received and the correct dose of replacement medication is taken every day.