Aarskog Syndrome Parents Support Group
62 Robin Hill Lane
Levittown, Pennsylvania, USA, 19055-1411
The Aarskog Syndrome Parents Support Group's purpose is to educate the public about the features and possible delays or learning difficulties that may or may not effect some of children with Aarskog Syndrome and to offer support by mail or phone when needed.
The Support Group publishes a yearly newsletter, Aarskog News, for a minimal fee. The newsletter has a parent contact page for those wishing to get in touch with others who are affected by Aarskog. A new parent packet is available and contains past newsletters and articles that are on file. There is an article file containing writings by doctors on this syndrome from genetic books. There is a form available for those who wish to order specific articles.
MAGIC publishes a quarterly newsletter The Magic Touch that is free with membership or in case of financial need membership is free. The children produce a newsletter of their own called The Magic Kids. There are also pamphlets and brochures available and a video "Just say yes to Growth Hormone". MAGIC supports local groups and provides parent-to-parent matching through networking forms that connect families with the same disorder.