In the wake of Hurricane Katrina, many organizations are targeting
relief efforts to the special needs of individuals with disabilities the
their families effected by the disaster. Below are a few links to
organizations who are collecting funds and supplies and information for
these families. Please let me know if you have a web link that
should be included on this list.
Linda Rowley Family
Village provides this list for informational purposes only and makes no
representations whatsoever about any other web sites. Please use
your own best judgment and prior experience with the various organization.
Please see the Better
Business Bureau Wise Giving Guide for Tips on Avoiding Questionable
Solicitations.
Diagnosis/Condition
Specific Relief
General Disability Relief
Efforts
Health Care Access & Disability Benefits
Programs
Website Maintaining Lists of
Disability-Related Relief Efforts
Coping & Mental Health
Resources
Durable Medical
Equipment & Disposable Medical Supplies
Articles
about Post-Katrina Health Precautions
Diagnosis/Condition Specific
Relief
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Autism Society of America - Katrina Relief Fund: Help Rebuild Families'
Lives
In the wake of Hurricane Katrina's devastation, the Autism Society of
America (ASA) staff is on the ground in the Houston area as evacuees
from the Gulf Coast region are arriving in town by the busload. We are
expecting over 50,000 families and have been informed that many of these
families have special needs. We are particularly concerned for the
safety and welfare of our families from the affected areas who have
children and loved ones on the spectrum.
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Celiac Disease
- Katrina Hurricane Communication Center for Celiacs
Learn how to donate or locate celiac foods.
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Cerebral Palsy - UCP Responds to Hurricane Katrina Disaster
Hurricane Katrina has devastated United Cerebral Palsy (UCP) of Greater
New Orleans, essentially ceasing services to hundreds of people with
disabilities — including dozens with severe disabilities who need
24-hour assistance from dedicated direct support staff.
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Children with Special Health Care
Needs - Families Helping Families Hurricane Relief Fund
Family Voices, a national nonprofit organization that advocates for and
supports families that have children and youth with special health care
needs, has launched the Families Helping Families Hurricane Relief Fund
to help fill the needs and relieve the pain of some of Hurricane
Katrina’s most vulnerable victims. One hundred percent of the donated
funds will be funneled to volunteer family leaders “on the ground” in
the affected states, leaders who are already assisting some of the most
vulnerable victims of Hurricane Katrina.
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Communication -
Augmentative and Alternative Communication
The United States Society for Augmentative and Alternative Communication
(USSAAC) is assisting individuals who rely on AAC, their families and
the professionals serving them who have been affected by Hurricane
Katrina. USSAAC will help children and adults who can benefit from AAC
(including professionals, agencies, rehabilitation centers, hospitals
and organizations serving them) to gain access to AAC equipment
(devices, communication displays, batteries, etc.), AAC materials
(books, software, etc.) and AAC/AT services.
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Deaf / Hard of Hearing
Emergency assistance plans have been put in place for Hurricane Katrina
victims who are deaf or hard of hearing and their families. The
Community Emergency Preparedness Information Network (CEPIN) Project has
designated CSD of Oklahoma and Northern Resource Virginia Center for
Deaf and Hard of Hearing Persons (NVRC) as CEPIN contact centers for
Hurricane Katrina victims and their families.
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Developmental Disabilities - The Arc of the United States
The Arc has established a Hurricane Katrina Relief Fund to channel
donations to our constituents affected by Katrina and the subsequent
flooding. All money donated will be used to fill the most immediate
needs for food, clothing, medicine, and shelter. There will be no
administrative costs deducted from donations to the fund. Be sure to
select Hurricane Katrina Relief Fund in the section headed My gift is...
in support of:
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Diabetes -
Children with Diabetes
Your donation will help fund diabetes relief efforts for victims of
Hurricane Katrina. All funds raised will be used to pay for diabetes
supplies and distribution efforts. CWD is working with the CWD
Foundation and dLife to help. Additionally, the site provides an address
where you can send diabetes supplies.
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Down Syndrome - Support Katrina Fund
The National Down Syndrome Society (NDSS) has established the Katrina
Fund for the Down Syndrome Community, which will be a temporary fund to
raise money for the Down Syndrome Association of Greater New Orleans,
the Gulf Coast Down Syndrome Society and the Mobile Area Down Syndrome
Support Group.
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Hemophilia
- The National Hemophilia Foundation
National Hemophilia Foundation will serve as a conduit connecting people
to resources. We will also do everything possible to help those of our
Chapters that are directly and indirectly affected to get back on their
feet.
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Juvenile Diabetes
- Research Foundation
In these days following Hurricane Katrina’s devastation, JDRF is working
to provide services and supplies to assist Gulf Coast residents in their
hour of need. If you wish to donate to our efforts on behalf of the
thousands affected by Hurricane Katrina, please complete our online form
or you can call 1-800-223-1138 or write info@jdrf.org, Attention:
Hurricane Relief.
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Kidney Dialysis
Patients - National Kidney Foundation
Information on Hurricane Katrina relief resources for patients requiring
dialysis, for transplant recipients, and for their families, as well as
for kidney care professionals.
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Mental Illness - National Alliance for the Mentally Ill
NAMI is providing a resource guide and a Katrina Hurricane Relief Fund
to assist consumers and families affected by the hurricane.
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Pseudoxanthoma Elasticum PXE International - Relief Effort
PXE International is offering help to any individuals or families
affected by pseudoxanthoma elasticum (PXE), who have been displaced or
lost property due to the hurricane. Contact us if you can help or if you
are in need of help.
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Spina Bifida - SB HELP - Hurricane Emergency Life-support Program
In the wake of a natural disaster, people with disabilities are most
vulnerable. We estimate as many as 10,000 people with spina bifida have
been displaced by Hurricane Katrina in New Orleans and along the Gulf
Coast. Even as the waters subside, men, women, and children with spina
bifida are
cut from life-saving medical supplies and critical services that are
vital to their health and well-being. SB HELP -- Hurricane Emergency
Life-support Program -- is the Spina Bifida
Association's response to the outpouring of concern from the Spina
Bifida Community and beyond for those who are living in the disaster's
aftermath.
General Disability Relief
Efforts
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Advocates & Researchers
Displaced by Hurricane Katrina - The Genetic Alliance
Genetic Alliance, located on a metro line in downtown DC, has
workstations available, including desks, computers and internet
connections, to any advocates, researchers or health care professionals
in need of a place to work.
-
Help
Disabled Victims of Hurricane Katrina
The Centers for Independent Living in Biloxi, Mississippi and New
Orleans have been gravely affected by the hurricane. In fact the Biloxi,
MS center was totally destroyed. Many of you are asking how you can
help. Visit our web site to see what we have learned from colleagues in
those states.
Health Care Access & Disability Benefits
Programs
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Social Security
Information for People Affected by Hurricane Katrina
The Social Security Administration is doing everything it can to ensure
that monthly payments get to beneficiaries affected by Hurricane
Katrina. Visit their web site for more details.
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Medicare & Medicaid Services
The Centers for Medicare & Medicaid Services has acted to assure that
the Medicare, Medicaid and State Children's Health Insurance Programs
will flex to accommodate the emergency health care needs of
beneficiaries and medical providers in the Hurricane Katrina devastated
states.
Many of the programs' normal operating procedures will be relaxed to
speed provision of health care services to the elderly, children and
persons with disabilities who depend upon them.
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FEMA - Federal Emergency
Management Agency
Every hurricane survivor with a disability must register to be able to
receive the full range of federal disaster relief assistance.
Registrants must make it clear that they have a disability or chronic
health care need. 1/800-621-FEMA, 1/800-462-9029, 1/800-462-7585 TDD/TYY
Website Maintaining Lists of
Disability-Related Relief Efforts
Coping & Mental Health
Resources
Durable Medical Equipment & Disposable
Medical Supplies
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Invacare Corporation Responds To Hurricane Katrina
Consumers calling 1-888-966-6468 will receive information about open
home medical equipment locations in the Gulf Coast region, or be
directed to other locations nearest them for home oxygen and home
medical equipment products and services. Invacare associates have been
in contact with the Red Cross and other disaster relief agencies to
assess their needs for oxygen and other medical products and equipment.
Additionally, we are working with Invacare Providers nationwide to
fulfill equipment needs and requests as they arise.
Articles about Health
Precautions
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