Aunt Katie’s Visit
Addresses assistive technology, coping mechanisms, good citizenship and the importance of wearing your seatbelt.
A Balancing Act: Living with Spinal Cerebellar Ataxia
Colin Gets a Chance
About a little boy with Down syndrome who finally gets to play the game he loves all thanks to his teammates for finally giving him a chance.
Count Us In
At ages nineteen and twenty-two, respectively, Jason Kingsley and Mitchell Levitz shared their innermost thoughts, feelings, hopes, and dreams, their lifelong friendship—and their experiences growing up with Down syndrome. Reissued here with a new afterword by the authors that recounts their successes and challenges as adults, Jason and Mitchell’s wit, intelligence, candor, and charm make a powerful and inspirational statement about the full potential of people with developmental disabilities.
Dance of Partnership
A series of books from Janice Fialka on inclusive education, secondary
transition, sibling issues and most notably about ways to strengthen the
parent-professional partnership.
Disability Joke Books
A refreshingly humorous look at issues and aspects of disability. More than 215 cartoons
from Frank Warner's wheelchair perspective hit the mark on everything from parking,
strangers assumptions, to lift mechanisms run amok!
The Down Syndrome Nutrition Handbook: A Guide to Promoting Healthy Lifestyles
Includes medical information regarding people with Down syndrome is helpful to
parents and professionals alike who want to know more about recommendations for
specific conditions, such as diabetes and celiac disease, as well as basic
nutrition and physiology. This latest edition includes updated resources and
information to reflect the most up-to-date information. The book is
written by Joan Guthrie Medlen, a registered dietician and the parent of a young
man with Down syndrome.
Eddie Goes to Kindergarten
Eddie is a very tall Standard Poodle raised and trained to be an assistance dog for people with disabilities. However, he showed much more interest in visiting people than in tasking and so changed careers to become a visiting therapy dog at nursing homes, hospitals, and schools. This is the story of one of his visits to a kindergarten class during his training, but it also includes an important 'life lesson' about the variety of things one can 'be' when one grows up.
Friends, Like You
An early education kit designed to teach hearing children, on a basic level, about hearing loss and ways that can help them communicate successfully with a classmate, friend or family member who is deaf or hard-of-hearing. From the Mainstream Center at Clarke School for the Deaf / Center for Oral Education.
The Functional Independence Skills Handbook
An assessment and a full curriculum with lesson plans designed to assist people with devlopmental disabilities in gaining more functional
independence. Domains of learning include adaptive behavior, affective skills, cognitive abilities, sensorimotor, socialization, speech and
vocational. Some sample lesson plans and other materials are available on the site.
God's Gift
About a young man with Stickler's Syndrome
Kara Mia
The story of sudden loss and slow recovery in a teenager with Long QT syndrome
Life on the Reflux Roller Coaster
A book about reflux disease in infants and children.
Making Life Easier Series
These books offer ways to live your life to the fullest, by overcoming obstacles along the way.
Mark The Peanut Butter Kid
This book from Bonny Billups is an inpirational true story about a young woman that experiences an unexpected pregnancy that gives her with a child with a special heart. It also can serve as a
parent's survival guide on how to care for a child with a heart conditions. The book also documents the child's out of body experiences during heart surgery.
Meet Annie
Meet Annie! She is a special little girl that is just like you, but she has Down syndrome. Join Annie in her engaging story and learn how we accept who we are. Come on in and meet Annie. She can’t wait to meet you!"
The Moon Balloon: A Journey of Hope and Discovery for Children and Families
One Handed in a Two Handed World
From Prince-Gallison Press
One Step at a Time
One Step at a Time is a unique journal, keepsake and guide for coping with a child's hospitalization.
Out Came the Sun by Judith Scott
A family's difficulties and triumphs raising a child with the rare genetic syndrome, Partial Trisomy 13. The disorder affects 1 in 10,000 newborns, leaving them with severe learning disabilities. Judith was devastated to learn that her first child, Emily, may not be able to walk, talk or read. However, with the love of her parents, and her own sheer determination, Emily exceeded all of the doctor's grim expectations with flying colors, inspiring herself and ultimately, her mother. This memoir can be a learning tool and a enlightening story for all families.
Place Last Seen
A novel that centers around the search for a Down Syndrome child lost on an ordinary day hike in the Sierra.
Red Riding Hood Races the Big Bad Wolf
Red Riding Hood views her wheelchair as an ability, not a hindrance, to race and defeat the Big Bad Wolf to Grandma's house.
From Twilight Press
The Recycling Occupational Therapist
Learn how to create and adapt activities for people of all different skill levels out of common household recyclable objects such as laundry bottles, soda bottles and cardboard boxes.
Riding The Bus With My Sister
Rachel Simon's sister Beth is a spirited woman who lives intensely and often
joyfully, and who also happens to have developmental disabilities (or what used
to be known as "mental retardation").
School Services in Speech-Language Pathology
By Trici Schraeder, M.S., CCC-SLP. Concrete, real life, success stories are shared. Strategies for proactive behavior management, conflict resolution, professional collaboration, conferencing and counseling, cultural competency, writing IEP goals (post IDEA ’04), informal assessment procedures, and creating testing accommodations are offered. Real life scenarios based on experiences shared by public school speech-language pathologists gives the reader concrete examples upon which to scaffold these complex professional concepts. The Oral Language Curriculum Standards Inventory is a must-have authentic assessment tool in this era of inclusive practices.
Self-Help Group Sourcebook
Listing of local non-profit self-help group clearinghouses worldwide; suggestions for starting both community and online mutual aid groups;
summaries of research studies studies conducted of self-help groups; a registry for those trying to start new national or international self-help group organization that don't yet
exist in the world.
Taking the Bully by the Horns
This self-help book from Kathy Noll and Dr. Jay Carter explores different ways children and teenagers are bullied (both mentally and physically), how the bully becomes a bully, how the victim
becomes a victim (sometimes there's a fine line between the two!), and what can be done about it.
The Way Life Is
The Way Life Is takes readers into the home of a young couple trying to accommodate their own needs, desires and demons while coping with the special needs of their children: Sara, born with a rare and life threatening disability known as Prader-Willi Syndrome; Gina, who arrived needing open-heart surgery in order to survive; and Andrew, an active and exceptionally healthy little boy stuck in the middle.
Understanding Stevens – Johnson Syndrome & Toxic Epidermal Necrolysis
People who survive this horrible, life-changing condition face untold challenges on a daily basis. Until now, there has been no one central informational reference about these conditions. This comprehensive book is the first of its kind, placing all known information about this condition in one place, detailing the causes, signs and symptoms; treatment, and long-term health ramifications. Includes treatment protocols for physicians. This book contains valuable information that may save your life, the life of a loved one, or it may help the survivor come to terms in living with this condition by knowing what to expect.
Up Close: A Mother's View
By Fiona Yaron Field - a moving photographic record and memoir of a mother daughter relationship in the light of an enduring disability from birth through adolescence. Her daughter, Ophir has Down Syndrome. "Up Close" is a remarkable work - meditative, unflinching, searingly honest and loving - a portrait of humanity at its most touching and challenging.
Walking Isn't Everything: An Account of the Life of Jean Denecke
This book discusses what it was like to get polio, Jean Denecke's experiences with various hospitals and doctors, and her experience in the Roosevelt Foundation facility in Warm Springs, Georgia. Giving a glimpse of how the delivery of medical services have changed since the polio edpidemics of the early 1950s, the book describes what it was like to be a woman with a disability in that era.
What's Wrong with Sam? For Everyone with a Brother or Sister with Mental Retardation
This book is more than a children’s book. It is written for children but will benefit adult readers. This book is about a young girl and her brother, who has mental retardation. This story focuses on her struggle to accept his difference.
Yoga for the Special Child
This book offers a therapeutic approach for babies and children with downs syndrome, attention deficit disorder, learning disabilities, and cerebral palsy.
You Are Not Your Illness: Seven Principles for Meeting the Challenge
This book from Linda Noble Topf (who has multiple sclerosis) reveals the keys to regaining emotional & spiritual wholeness when a serious illness or injury threatens to destroy one's sense of self.
