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- Aunt Katie’s Visit
Addresses assistive technology, coping mechanisms, good citizenship and the importance of wearing your seatbelt.
- A Balancing Act: Living with Spinal Cerebellar Ataxia
- Dance of Partnership
A series of books from Janice Fialka on inclusive education, secondary
transition, sibling issues and most notably about ways to strengthen the
parent-professional partnership.
- Dis"ability" Joke Books
A refreshingly humorous look at issues and aspects of disability. More than 215 cartoons
from Frank Warner's wheelchair perspective hit the mark on everything from parking,
strangers assumptions, to lift mechanisms run amok!
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The Down Syndrome Nutrition Handbook: A Guide to Promoting Healthy Lifestyles
Includes medical information regarding people with Down syndrome is helpful to
parents and professionals alike who want to know more about recommendations for
specific conditions, such as diabetes and celiac disease, as well as basic
nutrition and physiology. This latest edition includes updated resources and
information to reflect the most up-to-date information. The book is
written by Joan Guthrie Medlen, a registered dietician and the parent of a young
man with Down syndrome.
- The Functional Independence Skills Handbook
An assessment and a full curriculum with lesson plans designed to assist people with devlopmental disabilities in gaining more functional
independence. Domains of learning include adaptive behavior, affective skills, cognitive abilities, sensorimotor, socialization, speech and
vocational. Some sample lesson plans and other materials are available on the site.
- Kara Mia
The story of sudden loss and slow recovery in a teenager with Long QT syndrome
- Life on the Reflux Roller Coaster
A book about reflux disease in infants and children.
- Living Well with an Ostomy
By Elizabeth Rayson - A resource to all patients regardless of the type of ostomy
- Making Life Easier Series
These books offer ways to live your life to the fullest, by overcoming obstacles along the way.
- Mark The Peanut Butter Kid
This book from Bonny Billups is an inpirational true story about a young woman that experiences an unexpected pregnancy that gives her with a child with a special heart. It also can serve as a
parent's survival guide on how to care for a child with a heart conditions. The book also documents the child's out of body experiences during heart surgery.
- The Moon Balloon: A Journey of Hope and Discovery for Children and Families
- The "OK" Health Check: Improving Health Care for People with Learning Disabilities
From Fairfield Publications
- One Handed in a Two Handed World
From Prince-Gallison Press
- One Step at a Time
One Step at a Time is a unique journal, keepsake and guide for coping with a child's hospitalization.
- Place Last Seen
A novel that centers around the search for a Down Syndrome child lost on an ordinary day hike in the Sierra.
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Red Riding Hood Races the Big Bad Wolf
Red Riding Hood views her wheelchair as an ability, not a hindrance, to race and defeat the Big Bad Wolf to Grandma's house.
From Twilight Press
- The Recycling Occupational Therapist
Learn how to create and adapt activities for people of all different skill levels out of common household recyclable objects such as laundry bottles, soda bottles and cardboard boxes.
- Riding The Bus With My Sister
Rachel Simon's sister Beth is a spirited woman who lives intensely and often
joyfully, and who also happens to have developmental disabilities (or what used
to be known as "mental retardation").
- Self-Help Group Sourcebook
Listing of local non-profit self-help group clearinghouses worldwide; suggestions for starting both community and online mutual aid groups;
summaries of research studies studies conducted of self-help groups; a registry for those trying to start new national or international self-help group organization that don't yet
exist in the world.
- Special Siblings: Growing Up With Someone With a Disability
This book written by Mary McHugh is the author's story of growing up with her brother Jack who has cerebral palsy and mental retardation and who now lives in a home for retarded adults in Deland, Florida. It's also partly the story of over a hundred other siblings of people with disabilities - all disabilities, not just mental retardation. And it is partly the advice of people who have specialized in this field and know the feelings and reactions of siblings who have a brother or sister with a disability.
- Taking the Bully by the Horns
This self-help book from Kathy Noll and Dr. Jay Carter explores different ways children and teenagers are bullied (both mentally and physically), how the bully becomes a bully, how the victim
becomes a victim (sometimes there's a fine line between the two!), and what can be done about it.
- The Way Life Is
The Way Life Is takes readers into the home of a young couple trying to accommodate their own needs, desires and demons while coping with the special needs of their children: Sara, born with a rare and life threatening disability known as Prader-Willi Syndrome; Gina, who arrived needing open-heart surgery in order to survive; and Andrew, an active and exceptionally healthy little boy stuck in the middle.
- Understanding Stevens – Johnson Syndrome & Toxic Epidermal Necrolysis
People who survive this horrible, life-changing condition face untold challenges on a daily basis. Until now, there has been no one central informational reference about these conditions. This comprehensive book is the first of its kind, placing all known information about this condition in one place, detailing the causes, signs and symptoms; treatment, and long-term health ramifications. Includes treatment protocols for physicians. This book contains valuable information that may save your life, the life of a loved one, or it may help the survivor come to terms in living with this condition by knowing what to expect.
- Yoga for the Special Child
This book offers a therapeutic approach for babies and children with downs syndrome, attention deficit disorder, learning disabilities, and cerebral palsy.
- You Are Not Your Illness: Seven Principles for Meeting the Challenge
This book from Linda Noble Topf (who has multiple sclerosis) reveals the keys to regaining emotional & spiritual wholeness when a serious illness or injury threatens to destroy one's sense of self.
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