University
Family Village
Research Guide for Families

Finding information about research related to disability is not always straightforward.  We have pulled together some resources to help the process.  Remember, if you are looking for disability-specific information, start in the Family Village Library.

What type of research are you looking for?


Medical Research


Disability-Specific Information
Support groups & information networks often provide information about the specific diagnosis they respresent

Special Education



Rehabilitation
  • NIDRR - National Institute on Disability and Rehabilitation Research
    • NIDRR Projects - browse funded research on a variety of disability-related topics

       
  • NARIC - National Rehabilitation Information Center
    • NARIC Knowledgebase - resources focusing on disability and rehabilitation
    • Consumer/Public Search - Access resources for employment, advocacy, benefits and financial assistance, education, technology, and more.
    • RehabWire - Regular publication that highlights disability and rehabilitation research information.
       



Statistics

Community Services & Supports

Community programs and services vary greatly, not only at the state level, but the county and community level as well.  The best way to find out about resources in your community is to find an information and referral provider located there. 

  • Waisman Resource Center - If you live in Wisconsin, you can find out about Wisconsin resources and programs by calling the Waisman Resource Center at 1-800-532-3321.
     
  • For visitors outside of Wisconsin - Ideas for finding personal help in your state. 
    Not all states will have all the resources listed below.  But they should be able to help you track down at least one disability-related information and referral service in your locale.
     
    • Children's Hospitals - Often have parent resource rooms.  Click on the link, scroll down to "Community Outreach Programs" then choose "Family Resource Center" and click "Search" to get a listing of Children's Hospitals that maintain resource rooms.
       
    • 2-1-1   2-1-1 is an easy to remember telephone number that, where available, connects people with important community services and volunteer opportunities.  Check the service map on the 2-1-1 website to find out if it is available in your local area.
    • AIRS - Alliance of Information and Referral Systems - National organization of local, regional, and state Information and Service providers.  AIRS does not list members on their web site, but does like to state AIRS Organization, which in turn can help you find local organizations.  Click here to view state AIRS affiliates.
      • Inform Canada - National Information and Referral Organization
         
    • Centers for independent living (CILs) are private, nonprofit corporations that provide services to maximize the independence of individuals with disabilities and the accessibility of the communities they live in.  One of their core services is Information & Referral. 
       
    • Family Voices is a national, grassroots clearinghouse for information and education concerning the health care of children with special health needs.  There is a volunteer coordinator in almost every state.  To view a list of these coordinators, click here.
       
    • State Resources
      • NICHCY - Learn about resources and service providers in your state through NICHCY - the National Dissemination Center for Children with Disabilities
      • LD OnLine - Click on your state's name to find the local chapters of helpful organizations and other available resources for learning disabilities
      • Family Village State Resources - Web sites that are disability-related and state specific





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Last Updated July 24, 2012 by rowley@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/university/