Tuberous Sclerosis

• Who to Contact
• Where to Go to Chat with Others
• Learn More About It
• Web Sites
• Search Google for "Tuberous Sclerosis"

Who to Contact

Tuberous Sclerosis Alliance (formerly the National Tuberous Sclerosis Association)
801 Roeder Road, Suite 750
Silver Spring, MD 20910
800-225-6872
301- 562-9890
E-mail: info@tsalliance.org
Web: http://www.tsalliance.org/

The Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis while improving the lives of those affected. The Tuberous Sclerosis Alliance was founded in 1974 by four mothers coming together to provide fellowship, generate awareness, pursue more knowledge and provide hope to those that shared the common bond of tuberous sclerosis complex.

 

Where to Go to Chat with Others

• Tuberous Sclerosis Alliance Online Communities
  
  

Learn More About It

• What is tuberous sclerosis complex?
• NINDS Tuberous Sclerosis Information Page
• MedlinePlus: Tuberous Sclerosis
• Tuberous Sclerosis - eMedicine
• Tuberous sclerosis - Genetics Home Reference
• Living with TSC - Massachusetts General Hospital
• Tuberous Sclerosis 1 - information from OMIM
• Tuberous Sclerosis 2 - information from OMIM

Web Sites

• Tuberous Sclerosis Alliance (formerly the National Tuberous Sclerosis Association)
• Tuberous Sclerosis - Canada
• Tuberous Sclerosis Association of Great Britain
• The Australasian Tuberous Sclerosis Society

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Last Updated July 3, 2009 by familyvillage@waisman.wisc.edu
Document Source: http://www.familyvillage.wisc.edu/Lib_tube.htm