Proteus Syndrome Foundation
4915 Dry Stone Dr.
Colorado Springs, Colorado, 80918
The Proteus Syndrome Foundation is a 501 (c)3 not-for-profit organization founded in 1993 and governed by a voluntary Board of Directors, most of whom are parents of a child with Proteus Syndrome.
The main goals are patient and family support, publice education, medical staff education, promotion and funding of research and ultimately the treatment and cure of Proteus Syndrome.
The Medical Advisory Board of the PSF consists of seven clinical and research medical professionals. This international group of men and women are noted experts on Proteus Syndrome throughout the world.